Transplant games...Has anyone ever heard of the transplant games? I’ve always wanted to go. They have things such as track and field bowling...reactions2repliesAwarenessExercise
Food, Nutrition, and Health...During today’s video, I had a conversation with Niamh Gourlay. She holds a master’s degree from the University of Dublin in the...reactions20comments
Surviving and Thriving Because You Don't Look Sick...I recently read Surviving and Thriving with an Invisible Chronic Illness by Ilana Jacqueline. The author is a young woman who has suffered...reactions25comments
Why patients need to be their top advocates...As the year ends, I reflect back on what has been a tough time medically for me—and not just because of my...reactions16comments
Menopause and 25 years old!...When you think of menopause as a young woman; you would usually think of an older woman. A woman who has had...reactions10comments
Cinderalla Effect...Having both CLL and NHL my wife has named the "Chemo fog" effect to Cinderella effect. Sometimes in the afternoon, I get...reactions9comments
CLL mutation TP53 ...I can not find anyone who has experienced this!! Either firsthand or family/ friend. I know it's not good ,poor prognosis, etc...reactions5repliesDiagnosis
My Diagnosis and Living with Polycythemia Vera...I’m Nathan, I'm 47 years of age, and I was diagnosed with polycythemia vera in 2020, 2 years ago. I live in...reactions7comments
Using My Cancer Card...Okay, I admit it, I’ve used my cancer card. For those not familiar with the term, it means using a cancer diagnosis...reactions22comments
Chemo-Savvy: A CML Patient's Top 5 Caregiver Tips...I’ve been a leukemia patient since 2011 and it isn’t always easy to navigate this disease. It can be painful, disturbing, and...reactions14comments
Cancer Is A Disease of Feelings...All the feels. Cancer, and especially blood cancer, is so dependent on feelings that I wouldn’t be surprised to see it sitting...reactions26comments
If You Could......If you could where would you want your treatment care to take place? *Another Country *On a Beach *Clean & Sterile &...reactions25repliesCopingMultiple MyelomaTreatment
Life during Chemo...Too exhausting, too toxic. I wished at 85 yrs old my Auntie chose No Chemo Tx and went on Vacation! She was...reactions2replies
The Things We Remember...We just finished up a bathroom remodel at our house. What a pain. During the work, we discovered that some needed plumbing...reactions14comments
What A Year It Has Been...2022. A huge year for me in many ways. My first full year of not living in London since I moved there...reactions2comments
Reading Someone's Memoir About My Blood Cancer...What would I, a retired teacher from Oklahoma, possibly have in common with well-known authors and screenplay writers Nora and Delia Ephron?...reactionscomments
My Experience Being Diagnosed With Blood Cancer...A fellow cancer survivor recently asked me about my cancer experience. She discussed her initial symptoms and was surprised that I had...reactions4comments
Neuropathy - A Side Effect of Blood Cancer Treatment...Adopting a graceful attitude, when living with blood cancer like non-Hodgkin lymphoma is a way I am trying to peacefully deal with...reactions11comments
About Me...Diagnosed with non-hodgkin's lymphoma back in 2003. The first treatment was in 2005. I've had 4 maybe 5 treatments in all. I...reactions17comments
Tips for Intentional Decision-making...As 2023 rolls in as a new year to a fresh start; it may feel like there are remnants of 2022 or...reactions8comments
