Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
People Can Say the Craziest Things!...What has been the craziest thing said to you, while going through treatment?...Reactions0reactionsComments22 repliesAwareness
On My Birthday, Missing My Dog...If you have the good luck, as I do, to have had a happy childhood, your memories on your original birthday are likely to be better than your memories of...Reactions0reactionsComments10 comments
What has been the most memorable part of 2022?...As the year comes to an end, what has been the most memorable part of 2022?...Reactions0reactionsComments6 repliesCoping
"Let's Roll": What the Heroes of 9/11 can Teach Us About Facing Blood Cancer...The morning of 9/11/01 was a doubly surreal experience for me. I was waiting for an appointment with my doctor at M. D. Anderson's Leukemia Center in Houston while chaos...Reactions0reactionsComments5 comments
Not a Caregiver but......Before I could get a stem cell transplant at UVA, my partner had to sign a waiver saying she would be my caregiver. If not, no transplant. I didn't realize...Reactions0reactionsComments11 comments
Spouse...My husband was diagnosed with multiple myeloma 2 years ago. In the last month, he has taken a turn for the worse. Chemo, radiation, and meds did not help. He...Reactions0reactionsComments2 comments
The Show Must Go On...One of the silver linings that has come out of having blood cancer is learning how to integrate myself into acting again and being able to help others do the...Reactions0reactionsComments12 comments
Catastrophizing - Big Word, Big Stress...Catastrophizing. Oh boy, that’s a big word. A big, scary, word. Of course, as blood cancer patients we should probably be used to scary words, “cancer” being the big daddy...Reactions0reactionsComments17 comments
Do Not Give Up...I was diagnosed in 2014 with Waldenstrom’s Macroglobulinemia and have been on different meds and infusions. I am currently on Brukinsa and was on Imbruvica for years. I am traveling...Reactions0reactionsComments0 comments
Not 1 but 2...My wife was told she has blood cancer 6 months ago so our journey begins. She's 59 and scared to death she has always been healthy now her life has...Reactions0reactionsComments1 comments
Lost in the System...The basic premise of this story is simple I was fighting something but what? I didn’t have symptoms close enough together, we were all in lockdown, and I had too...Reactions0reactionsComments2 comments
Finding Support in Tough Times...Find your "support system." One of the most common terms we will hear and use while on this blood cancer journey and even after. It is most definitely a true...Reactions0reactionsComments32 comments
How to Talk to a Blood Cancer Patient...Recently, I was thinking about the question: How should a person speak to someone living with a blood cancer? The only answer I could come up with is “normally.” What...Reactions0reactionsComments11 comments
How to Stop Worrying...September was a very difficult month for me. It is the anniversary of my devastating news of a cancer diagnosis as well as the due date of my annual CAT...Reactions0reactionsComments4 comments
What Is the Social Health Network Community?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments1 comments
Game Comparisons...What popular games would be a perfect description of your blood cancer journey? I would have to say Chutes and Ladders would be it for me. I know something about...Reactions0reactionsComments22 replies
I'm Still Here...I know it’s been a while. And a lot has happened. My daughter is now 9 and a half months old. We have a 5-and-a-half-month-old puppy and I’m still off...Reactions0reactionsComments6 comments
Hydroxyurea...I've been taking Hydroxyurea, 1000 mg a day for almost 6 years now. My platelet numbers hang out between 350-450 on average. I know the medication itself could give me...Reactions0reactionsComments1 repliesTreatment
Exercise ...Did anyone workout while in active treatment and if so how did working out while in active treatment make you feel?...Reactions0reactionsComments17 repliesAwarenessCopingDiagnosis
