Diagnosed with Multiple Myeloma

By CommunityMember757

1 min read

I was diagnosed with multiple myeloma bone marrow cancer last year in July. I go to chemo twice a week. I'm in remission right now I also suffer from neuropathy, diarrhea, and nausea every day because of the medicine they give me. I stay positive in life sometimes I don't have an appetite most of the time I drink plenty of water and fruit juices. Sometimes I will lay in bed all day.

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Patient007 Member
I was diagnosed with multiple myeloma 30 years ago, and have been in remission the last decade. Lessons we learned and strategies used are the subject of 4 minute YouTube videos. View the latest episodes; click “videos” at top to see all episodes <a href='https://youtube.com/channel/UCqLcRQUKliWxNh_4avhBysg' target='_blank' rel='noopener noreferrer ugc'>https://youtube.com/channel/UCqLcRQUKliWxNh_4avhBysg</a>
Daniel Malito Moderator
Just know you are not alone. I laid in bed till 1pm today. Yeah, I knew I should probably get up but I just kept not getting up. It happens, and it's perfectly OK. Keep on keepin' on, DPM
Dennis Golden Moderator
<inline-mention username="CommunityMember140" user-id="4675217"/> When I was on chemo I lost both my appetite and sense of taste. One of the hospital nurses offered a personal observation (not medical) based on the many cancer patients she cared for. She told me just before I was to go home that in the very near future I would find some food that appealed to me and said ... no matter what it is just eat and gain strength . She added ...do not worry about healthy eating just eat even if it is the same thing for breakfast lunch and dinner 7 days a week. Sure enough when I got home from the hospital (that is another story) I found that anything with tomato sauce offered some sense of taste . Also discovered dark chocolate was a real winner. Your finds may be very different If history does repeat itself hang in there you just might find something that offers some sense of taste for you. While I just wanted to stay in bed I made it a point to do a short walk up and down my driveway every day ... And yes sometimes that walk was just standing outside my back door and getting some fresh air. Good luck don't force yourself and ... please keep us posted. Dennis(Blood-Cancer.com TEAM)
Susan Gonsalves Moderator & Contributor
Just know there are people here who understand. These days, if I have to stay in bed longer, I just accept that fact as a way of life. No appetite either but it is so important to stay hydrated. I'm wishing you the best. Try to hang in there. Susan (Blood-Cancer.com Team Member)