Change and More Stress Are Coming...Today has also been really hard for a variety of reasons. My toddler has needed a lot of attention and focus after spending 3 nights with her father. Things with...reactionscomments
Preventive Medicine and Multiple Myeloma Advocacy...I had the pleasure of attending this year’s ACPM (American College of Preventive Medicine) conference in Washington DC. In a nutshell, ACPM’s main mission is to modify the healthcare system...reactionscomments
The "Good" Cancer...I have heard some people say non-Hodgkins follicular lymphoma (FL), is the “good” kind of cancer. I mean yes and no. I don’t think there is any “good” cancer. With FL...reactions2comments
Multiple Myeloma Diagnosis...Summer of 2023, I started having extreme back pain and hip pain. I bent over in my kitchen to pick something up, and I couldn't get back up again. I...reactionscomments
Chronic Questioning With Chronic Myeloid Leukemia...It is easy for others to forget the chronic nature of chronic myeloid leukemia (CML), but I do not have the luxury of forgetting. In October, I will mark the...reactions2comments
Don't know put for them to take blood every 2 months ...Why did my numbers go back up after 9 months, they where down to 45...reactions4repliesDiet & NutritionDiagnosis
Are your pharmacists helpful or unhelpful?...Living with blood cancer usually involves medicine - plenty of it. Are your pharmacists sympathetic to your needs?...reactionsrepliesHealthcare Team
Dear Blood Cancer, I Have a Bone To Pick With You!...You came uninvited, at the worst of times, Bringing with you mountains too steep to climb. I hate you for the fear, the hurt, the tears, For how you touch...reactionscomments
Chemo, Radiation, and HURRICANES?!? Oh My!!...Recently I've had the pleasure of going through yet another hurricane in my lifetime. I was raised mainly in Florida, so hurricanes are a normal occurrence. But since moving to...reactions5comments
CLL...My journey started in May of 2019. Through blood tests, my PCP suspected blood cancer. A BMB showed 70% affected, and I started treatment with my spleen enlarged at 21...reactions1comment
Uncertainty...I was feeling very tired and weak. I’d sleep so much every day, and I had bruises on my shoulders and was out of breath for no reason. Then one...reactions4comments
My road to recovery...My name is Anna, and I was diagnosed with stage four non-Hodgkin’s lymphoma, double cell, in November 2022. I underwent six rounds of R-CHOP and two bone marrow biopsies. I...reactions3comments
Still here...I have PV and ET with the JAK2 mutation. My blood work has been really low, but my hematocrit has started to rise again. It's getting close to 45. It...reactionscomments
CLL you picked the wrong person...I had a sore throat during COVID. Couldn't see many doctors in person back then. My ENT did test after test, and I finally said I'd know if I'd had...reactionscomments
Embracing Blood Cancer...There comes a time when we realize that some things in life are not working. For me, that deep awakening occurred following a series of traumatic episodes. Strangely enough, a...reactions2comments
Chronic lymphatic leukaemia ...Hi my husband just found out today he has chronic lymphatic leukaemia...reactions3replies
Overcoming Obstacles...It took me 6 months of training to prepare my mind, as well as my mind and body for a race. I’m so glad I signed up, and I must...reactionscomments
Breaking Down Blood Cancer Awareness in September...September is Blood Cancer Awareness Month. If you are on this site, you likely either have blood cancer or know someone who does. On thing is for sure: we all...reactions1comment
Living with Blood Cancer: Overcoming Judgement...Have you ever felt judged for having cancer? There’s a red flag I’ve noticed that tells me when a conversation might not go over well. It starts with a simple...reactionscomments
Understanding Non-Compliance: My Journey with Blood Cancer...Dealing with blood cancer is challenging enough without facing misunderstandings and misjudgments. Here’s my story of being perceived as non-compliant to treatment, and what I did about it. When I...reactions2comments
