Overcoming Obstacles...It took me 6 months of training to prepare my mind, as well as my mind and body for a race. I’m...reactionscomments
Breaking Down Blood Cancer Awareness in September...September is Blood Cancer Awareness Month. If you are on this site, you likely either have blood cancer or know someone who...reactions1comment
Living with Blood Cancer: Overcoming Judgement...Have you ever felt judged for having cancer? There’s a red flag I’ve noticed that tells me when a conversation might not...reactionscomments
Understanding Non-Compliance: My Journey with Blood Cancer...Dealing with blood cancer is challenging enough without facing misunderstandings and misjudgments. Here’s my story of being perceived as non-compliant to treatment...reactions2comments
CML...Hi, I was diagnosed with CML December of 23! What a shock it was when my doctor told me! Never thought I...reactionscomments
Embracing a New Normal by Overcoming Feelings of Failure...As cancer patients, we often have to come to grips with “the new normal.” For us, it starts soon after diagnosis. Eventually...reactions3comments
My Message of Hope...This year, I had a slightly different attitude towards blood cancer awareness month, specifically CML Awareness Day (September 22), and decided to...reactionscomments
CAR T and the Fatigue Fallout...When I was going into the trial for CAR T-cell therapy, I knew it required a seven-day hospital stay. I told the...reactions2comments
Did you experience fatigue after receiving CAR T-Cell Therapy?..."My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and...reactions6repliesSide Effects
What Do You Have To Prove?...As the youngest sibling, I spent a lifetime trying to keep up with the accomplishments, expectations, and approval of my older sisters...reactionscomments
Paid research opportunity for cancer patients and their family caregivers!...NYU Culture, Emotion, and Health Lab are inviting cancer patient-family caregiver pairs to participate in an online research study to share their...reactionsrepliesResearch & Clinical Trials
The Importance of Sleep...We sleep for one-third of our lives. That’s how important sleep is. However, Dr. Marishka Brown, a sleep expert at the National...reactions3comments
Anyone aware of possible link between CLL and AVN of hip?...I have had CLL for 5 years. I was treated for 18 months with Imbruvica. I requested to discontinue the drug due...reactions3repliesLeukemia
Being diagnosed with a rare Blood Cancer....It was enough being diagnosed with Lupus and Sjogrens and Fibromyalgia and RA. I pretty much knew I've had these since a...reactions2repliesMental HealthDiagnosis
Newly Diagnosed with Polycythemia Vera...Last month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had...reactions3comments
To Share a Diagnosis or Not...A blood cancer diagnosis is a very private thing. It is truly life-changing. You are in the battle for your life. You...reactions5comments
The Importance of Health Literacy for People With Blood Cancer...Health literacy is a powerful tool that can improve the quality of life for people with blood cancer. Blood cancer is a...reactionscomments
From Drugstore Gloom To a Happier Place...It was a dark and stormy night... ...inside my head at the CVS pharmacy in Granby, Mass. I needed my prescription strength...reactions2comments
Finding Support in Unexpected Places...Sometimes, support comes from places we least expect—whether it's a casual acquaintance, an online community, or a new hobby that brings you...reactions6repliesFriends & FamilyCopingMental Health
