Embracing a New Normal by Overcoming Feelings of Failure...As cancer patients, we often have to come to grips with “the new normal.” For us, it starts soon after diagnosis. Eventually, and probably, the sooner the better, we have...reactions3comments
My Message of Hope...This year, I had a slightly different attitude towards blood cancer awareness month, specifically CML Awareness Day (September 22), and decided to do an Instagram live about it. On my...reactionscomments
CAR T and the Fatigue Fallout...When I was going into the trial for CAR T-cell therapy, I knew it required a seven-day hospital stay. I told the admitting nurse that I would be out of...reactions2comments
Did you experience fatigue after receiving CAR T-Cell Therapy?..."My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and asking my oncologist when it would let up...reactions6repliesSide Effects
What Do You Have To Prove?...As the youngest sibling, I spent a lifetime trying to keep up with the accomplishments, expectations, and approval of my older sisters. As a mom, I have found myself wanting...reactionscomments
Paid research opportunity for cancer patients and their family caregivers!...NYU Culture, Emotion, and Health Lab are inviting cancer patient-family caregiver pairs to participate in an online research study to share their cancer-related experiences in the United States. They are...reactionsrepliesResearch & Clinical Trials
The Importance of Sleep...We sleep for one-third of our lives. That’s how important sleep is. However, Dr. Marishka Brown, a sleep expert at the National Institutes of Health, points out that sleep is...reactions3comments
Anyone aware of possible link between CLL and AVN of hip?...I have had CLL for 5 years. I was treated for 18 months with Imbruvica. I requested to discontinue the drug due to severe bone and joint pain. Discontinuing Imbruvica...reactions3repliesLeukemia
Being diagnosed with a rare Blood Cancer....It was enough being diagnosed with Lupus and Sjogrens and Fibromyalgia and RA. I pretty much knew I've had these since a very young child. Loosing loved ones n friends...reactions2repliesMental HealthDiagnosis
Newly Diagnosed with Polycythemia Vera...Last month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had a JAK2 mutation, indicating I have PV and...reactions3comments
To Share a Diagnosis or Not...A blood cancer diagnosis is a very private thing. It is truly life-changing. You are in the battle for your life. You don’t know how others will react if you...reactions5comments
The Importance of Health Literacy for People With Blood Cancer...Health literacy is a powerful tool that can improve the quality of life for people with blood cancer. Blood cancer is a type of cancer that affects the cells in...reactionscomments
From Drugstore Gloom To a Happier Place...It was a dark and stormy night... ...inside my head at the CVS pharmacy in Granby, Mass. I needed my prescription strength fluoride toothpaste. The pharmacist wouldn’t give it to...reactions2comments
Finding Support in Unexpected Places...Sometimes, support comes from places we least expect—whether it's a casual acquaintance, an online community, or a new hobby that brings you peace. Have you found support in an unexpected...reactions6repliesFriends & FamilyCopingMental Health
Multiple myloma ...Been diagnosed 8 years this Oct I am 55 years old. Is there anything I am missing to do and treatment...reactions1replyDiagnosisDiet & NutritionDepression
Advice for building a support system...What advice would you give to someone looking to build a strong support system during their blood cancer journey?...reactions100repliesAwarenessIntimacy & RelationshipsMental Health
Who is in your support circle? ...Share a moment when your support circle made a big difference for you....reactions10repliesAwarenessMental HealthIntimacy & Relationships
Rare Blood Cancer...I have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a rare blood cancer. I would like to find...reactions1comment
Diagnosed with CMML and Sent to a Rheumatologist...I was diagnosed with CMML 6 mo. Ago. I was feeling OK till about 4 to 6 weeks ago, when I started feeling bone pain. The oncologist sent me to...reactions1comment
