Newly Diagnosed with Polycythemia Vera...Last month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had a JAK2 mutation, indicating I have PV and...reactions3comments
To Share a Diagnosis or Not...A blood cancer diagnosis is a very private thing. It is truly life-changing. You are in the battle for your life. You don’t know how others will react if you...reactions5comments
The Importance of Health Literacy for People With Blood Cancer...Health literacy is a powerful tool that can improve the quality of life for people with blood cancer. Blood cancer is a type of cancer that affects the cells in...reactionscomments
From Drugstore Gloom To a Happier Place...It was a dark and stormy night... ...inside my head at the CVS pharmacy in Granby, Mass. I needed my prescription strength fluoride toothpaste. The pharmacist wouldn’t give it to...reactions2comments
Blood Cancer Awareness Month Giveaway 2024 - CLOSED...This giveaway has closed. Winners are being chosen and notified the week of October 7th, 2024! Thank you for participating, and good luck! In honor of Blood Cancer Awareness Month...reactions2comments
Finding Support in Unexpected Places...Sometimes, support comes from places we least expect—whether it's a casual acquaintance, an online community, or a new hobby that brings you peace. Have you found support in an unexpected...reactions2repliesFriends & FamilyCopingMental Health
Multiple myloma ...Been diagnosed 8 years this Oct I am 55 years old. Is there anything I am missing to do and treatment...reactions1replyDiagnosisDiet & NutritionDepression
Blood Cancer Awareness Month 2024: Support Circle...As we kick off Blood Cancer Awareness Month, we’re focusing on the theme of "Support Circle." Navigating blood cancer can be overwhelming, but having a solid support system can make...reactions1comment
Advice for building a support system...What advice would you give to someone looking to build a strong support system during their blood cancer journey?...reactions95repliesAwarenessIntimacy & RelationshipsMental Health
Who is in your support circle? ...Share a moment when your support circle made a big difference for you....reactions10repliesAwarenessMental HealthIntimacy & Relationships
Rare Blood Cancer...I have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a rare blood cancer. I would like to find...reactions1comment
Diagnosed with CMML and Sent to a Rheumatologist...I was diagnosed with CMML 6 mo. Ago. I was feeling OK till about 4 to 6 weeks ago, when I started feeling bone pain. The oncologist sent me to...reactions1comment
Living with NHL of the Central Nervous System...My name is Andrew. I am diagnosed with NHL of the Central Nervous System. I have been in treatment for 5 years now. My advice is to live one day...reactions1comment
Living with Myelodysplastic Syndromes for Seven Years...Seven years ago, I learned that I have myelodysplastic syndrome (MDS). I didn't know what this strange-sounding disease was! I had to learn how to pronounce, spell, and explain it...reactionscomments
Blood Cancer...and the now what...What was one of the first things you did upon receiving your blood cancer diagnosis? Do Share...reactions13repliesDiagnosisCopingNewly Diagnosed
Any one else here have polycythemia vera? ...I received an email from Kaiser that I have a JAK2 mutation that means I have PV 3 1/2 weeks ago. I haven't spoken to anyway yet as they move...reactions3repliesLeukemia
Husband 67 may go on Long Term work Disability Sept 13yh13...If my husband goes on Long Term Disability on Sept 13. He will be forced to go on Disability and Medicare. Due to him being 67 can he keep a...reactionsrepliesAwareness
The Financial Cost of Cancer and How To Deal With It...The cost of blood cancer. We have gone through endless posts here talking about the emotional, physical, and social cost of cancer and all of its effects. It can wreck...reactions5comments
What's the most helpful advice you've received?...What has been the most helpful advice you've received since your blood cancer diagnosis?...reactions1replyNewly DiagnosedTips & AdviceAwareness
Conversations With Myself About Relapsing ... Or Not...It’s a good thing I live by myself, because I sure do talk to myself a lot. Or do I talk to myself a lot because I live alone? It’s...reactions2comments
