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Blood Cancer...and the now what

What was one of the first things you did upon receiving your blood cancer diagnosis?

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  1. The first thing I did when my MD called me at 8:45 PM was to say thank goodness. I had previously been misdiagnosed with what was thought to be pancreatic cancer and, if correct, faced a more challenging and shorter future.

    NHL, by comparison, my MD explained was more likely to be cured or put into remission vs Pancreatic. In life, I learned one's blessings are often a matter of perspective. Dennis (Blood-Cancer.com TEAM)

    1. Worry a lot about what was to come next

      1. Totally understandable. Please remember to take each day and step one at a time. I can say there's no script to it all as you will move in real time. Wishing you all the very best along the way!
        Yolanda (Team member)

    2. I’m a realist- am actually more concerned about what will happen with my family after I die and my monies are no longer in the pot !! I don’t want to have them go through the end of my illness with me. It may be a very harsh looking experience. I am already getting huge areas of very thin blood blistering on my arms, and it isn’t unusual for it to go all over the body. They break easily in the shower. I put triple antibiotic cream on them if they break. I can only cover them with bandages if they haven’t broken open. Or else they stick and rip them open when I change them.
      Again, I repeat myself: get as much information about just HOW your disease will progress. You can never have too much information.

      1. Many can relate to the idea of what the future holds, and how our loved ones will be affected. You're taking the right course in learning as much as you can about your condition. If anything is still not clear reach out to your medical team to reexplain as much as you need them to. Wishing you the very best!
        Yolanda (Team Member)


      2. Aging and lymphomas also make our skin become thinner. Which means sometimes even a too tight touch is enough for a 'bruise'. I suggest trying to put even a bit of antibiotic gel, cream (whatever you use) with that band-aid and leave it there for as long as it will stay (3-5 days at least or just keep adding antibiotic gel/cream and new band-aid ASAP to cover).


        I've had lymphoma diagnosed for almost 7 years. And for 7 years, this is how I avoid breaking those bruises and clear up the blood collected to 'go with the flow' and heal. Your skin IS porous. So, yes, it goes into your skin (just like using a hydrating lotion to take the dryness away). Try it before you negate it.

    3. I was shocked first of àll. Then I started researching the disease to understand what was and would be happening.

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