Did you experience fatigue after receiving CAR T-Cell Therapy?..."My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and...reactions8repliesSide Effects
What Do You Have To Prove?...As the youngest sibling, I spent a lifetime trying to keep up with the accomplishments, expectations, and approval of my older sisters...reactionscomments
Paid research opportunity for cancer patients and their family caregivers!...NYU Culture, Emotion, and Health Lab are inviting cancer patient-family caregiver pairs to participate in an online research study to share their...reactionsrepliesResearch & Clinical Trials
The Importance of Sleep...We sleep for one-third of our lives. That’s how important sleep is. However, Dr. Marishka Brown, a sleep expert at the National...reactions3comments
Anyone aware of possible link between CLL and AVN of hip?...I have had CLL for 5 years. I was treated for 18 months with Imbruvica. I requested to discontinue the drug due...reactions3repliesLeukemia
Being diagnosed with a rare Blood Cancer....It was enough being diagnosed with Lupus and Sjogrens and Fibromyalgia and RA. I pretty much knew I've had these since a...reactions2repliesMental HealthDiagnosis
Newly Diagnosed with Polycythemia Vera...Last month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had...reactions3comments
To Share a Diagnosis or Not...A blood cancer diagnosis is a very private thing. It is truly life-changing. You are in the battle for your life. You...reactions5comments
The Importance of Health Literacy for People With Blood Cancer...Health literacy is a powerful tool that can improve the quality of life for people with blood cancer. Blood cancer is a...reactionscomments
From Drugstore Gloom To a Happier Place...It was a dark and stormy night... ...inside my head at the CVS pharmacy in Granby, Mass. I needed my prescription strength...reactions2comments
Finding Support in Unexpected Places...Sometimes, support comes from places we least expect—whether it's a casual acquaintance, an online community, or a new hobby that brings you...reactions6repliesFriends & FamilyCopingMental Health
Multiple myloma ...Been diagnosed 8 years this Oct I am 55 years old. Is there anything I am missing to do and treatment...reactions1replyDiagnosisDiet & NutritionDepression
Advice for building a support system...What advice would you give to someone looking to build a strong support system during their blood cancer journey?...reactions100repliesAwarenessIntimacy & RelationshipsMental Health
Who is in your support circle? ...Share a moment when your support circle made a big difference for you....reactions10repliesAwarenessMental HealthIntimacy & Relationships
Rare Blood Cancer...I have Myelodysplastic - Abnormal Karyotype with 5Q Deletion of the long arm Chromosome 5. It is a long name and a...reactions1comment
Diagnosed with CMML and Sent to a Rheumatologist...I was diagnosed with CMML 6 mo. Ago. I was feeling OK till about 4 to 6 weeks ago, when I started...reactions1comment
Living with NHL of the Central Nervous System...My name is Andrew. I am diagnosed with NHL of the Central Nervous System. I have been in treatment for 5 years...reactions1comment
Living with Myelodysplastic Syndromes for Seven Years...Seven years ago, I learned that I have myelodysplastic syndrome (MDS). I didn't know what this strange-sounding disease was! I had to...reactionscomments
Blood Cancer...and the now what...What was one of the first things you did upon receiving your blood cancer diagnosis? Do Share...reactions13repliesCopingDiagnosisNewly Diagnosed
Any one else here have polycythemia vera? ...I received an email from Kaiser that I have a JAK2 mutation that means I have PV 3 1/2 weeks ago. I...reactions3repliesLeukemia
