Becoming CAR T Man...It was a whirlwind of activity once I entered the CAR T trial for my blood cancer. I was struggling with recurring pneumonia since the stem cell transplant. My ears...reactions2comments
Navigating Insurance Benefits: Balancing Health and Employment...For over a decade I worked while undergoing treatment for chronic myeloid leukemia. I experienced a delicate balance between work commitments and health challenges while fully employed. Throughout that time...reactions6comments
How long were you sick before you received a diagnosis? ...I'm thankful that I had a family doctor who refused to give up on me. By the time the leukemia blast cells were discovered, it was months of repeated bloodwork...reactions6repliesTips & AdviceLeukemiaAwareness
Graft vs. Host Disease (GVHD)...How have you managed GVHD post-transplant, and what resources helped you most?...reactions2repliesTreatmentTips & AdviceSide Effects
Just Delayed, Not Denied...Reflecting on my time in active treatment, it was challenging to accept that everyone's treatment journey is different. Some people have shorter treatments, while others have longer ones. I often...reactions2comments
Tyler Goodwin...Tyler was diagnosed with Follicular Lymphoma in the spring of 2016. FL is known as an "indolent" or slow-growing cancer, but it some cases it can be aggressive. That turned...
Strategies To Boost Your Immunity After Cancer Treatment...As a blood cancer survivor, our immune system may be altered because of chemotherapy. I've noted that I now have more frequent upper respiratory infections and colds. The function of...reactions2comments
Give Me Some Consistency, Please!...Do you know that feeling when someone tells you they are going to do something, but they don’t do it? Or what about feeling very excited to do something, and...reactions2comments
Two and 17 Years Later...Once again I’ve started writing various different blog posts in my head on dog walks, never writing them down or dictating them in a voice note. So by the time...reactionscomments
FeaturedActive 3 days agoOral vs. IV Chemotherapy...What are the pros and cons of oral versus intravenous chemotherapy?...reactions9repliesTreatmentTips & Advice
Failed Treatments Lead To CAR T Trial...After years of going through scanxiety, I have finally graduated to labxiety, transitioning from bi-annual scans to just having labs. I am about to hit my six-year anniversary of my...reactions13comments
Just Because I Have Blood Cancer...As a retired elementary teacher, I enjoy reading aloud to second graders as a monthly volunteer project. Despite technology, children still enjoy being read to. I recently reviewed Just Because by...reactions2comments
Sometimes Bad News Warrants a 'You Cannot be Serious'...One of the reasons I love the Netflix series “Never Have I Ever” is the role of tennis legend John McEnroe as the narrator in comedian Mindy Kaling’s semi-autobiographical coming-of-age...reactions2comments
Blood Cancer Was Not on My Bingo Card...When I was a kid, I used to play at being a writer. My friend down the street and I would create little books that I’m sure were brilliant (insert...reactions2comments
Were There Any Signs?...Many people looking in from the outside wonder what, if any, call-outs were given before a diagnosis of blood cancer. Unfortunately, for most, warning signs are not necessarily easy observations...reactions2comments
Sensible Choices...Have you found yourself making many life choices outside of your condition, that make you struggle with should you or shouldn't you? Did you have a cocktail here and there...reactionsrepliesCopingTips & Advice
Do you have a moment in your cancer journey that was unexpectedly funny?...Cancer is awful, for sure, but it also can produce some of the most unintentionally hilarious moments. Have you ever laughed during your cancer journey when you least expected it?...reactions1reply
Am I Still Safe?...I have my next check-up in 2 weeks. Later than it should have been, really, but there wasn’t a time slot that worked, and I’m not going to lie, it...reactionscomments
That Time Cancer Made Us Laugh So Hard We Almost Soiled Ourselves. Again....Not everything about blood cancer is sad. There, I said it. I know, I know it sounds like I have fallen off the chair and bonked my head, right? The...reactionscomments
