What coping strategies have been most effective for you in managing life with blood cancer?...Questions to help get the conversation started: "How do you maintain a positive outlook during challenging moments in your blood cancer journey?" "Have you found any specific activities or hobbies...Reactions0reactionsComments15 repliesCopingNewly DiagnosedTips & Advice
Intimacy And Blood Cancer...Hearing the words “you have blood cancer” sent chills up and down my spine. Soon after that, the same cold chill impacted every facet of my future life, including any...Reactions0reactionsComments0 comments
Fear Rigidity...I don’t know anyone with a cancer diagnosis that doesn’t experience fear, crippling doubt, and ample amounts of anxiety. I was diagnosed with chronic myeloid leukemia in 2011. I’ve only...Reactions0reactionsComments5 comments
Memory Insecurity...My memory has always been great….well, okay, my long-term memory. I can't remember the short term, ironically. But anyway, it's definitely gotten worse since having blood cancer. When I started...Reactions0reactionsComments15 comments
Looking for suggestions on side effects ...I’m diagnosed with MM in 2020. Recently I got a lytic lesion on my rib and the other day I coughed. It is hurting more now. How to manage a...Reactions0reactionsComments1 repliesTips & Advice
Onset Issues...Did your doctor ever express the possibility of an onset condition with multiple myeloma? It refers to cancers diagnosed at ages 20-50. The numbers seem to be rising, Are you...Reactions0reactionsComments2 repliesAwarenessDiagnosisMultiple Myeloma
Blood Cancer Breakdown...I was relaxing in the sunroom one morning reading when the phone rang. The caller, on that occasion, turned out to be that all-too-familiar automated voice asking for confirmation on...Reactions0reactionsComments0 comments
Dealing With the Inevitable Unpredictability Of Cancer...I’ve been thinking a lot lately about what comes next. It’s a pretty big subject when you live with a blood cancer or any of the chronic cancers, really. What’s...Reactions0reactionsComments0 comments
Bills, Bills, Bills ~Destiny Child...Bills, bills, and bills uuuggghhhh!!!! That's the song that has been running through my head today. You may have heard it before chemotherapy does not just take the bad cells...Reactions0reactionsComments0 comments
Blood Cancer Treatment Experiences 🩸💪...Living with blood cancer? From chemo to experimental therapies, we want to know what you've tried and how it's worked out. Let's swap stories and support each other through the...Reactions0reactionsComments10 repliesTreatmentTips & Advice
Working With Cancer & How Employers Play Games...Lately, I have been seeing talk about working with cancer. It’s something more than a few of us try to do, and for some of us it’s a must-do in...Reactions0reactionsComments2 comments
Remission Since 2020...Hi, my name is Harold. I've been I remission since 2020. All I can say God is good...Reactions0reactionsComments1 comments
We Are Not Our Disease...I have been looking for a condo for a couple of years. I’m an empty nester, divorced, and living alone in a house that is too big for me. Part...Reactions0reactionsComments1 comments
Advocate to Advocate Live...I was chosen again to attend HealtheVoices conference. What makes this particular conference unique is the safe meeting place for a wide range of patient leaders/advocates. Most times, a lot...Reactions0reactionsComments2 comments
How do you balance being informed VS overwhelmed? ...How do you navigate the balance between staying informed about your condition and avoiding overwhelming yourself with medical information or statistics?...Reactions0reactionsComments15 repliesTips & AdviceNewly Diagnosed
Learning When Baby Steps are Enough With CML...Having blood cancer, sometimes I feel like my movements are stifled by quicksand. There are ups and downs in life for everyone. But trudging through nine years with chronic myeloid...Reactions0reactionsComments5 comments
Being a Caregiver Can Be Tough...Taking care of someone is always difficult. Of course the amount of difficulty depends on the ability of the recipient, but no matter what, it still takes a toll on...Reactions0reactionsComments2 comments
Blue Toes...I have had Polycythemia Vera for four years now and I'm suffering from Polycythemia toes or Blue Toes. The big toes on each foot are swollen, red, raw and even...Reactions0reactionsComments3 replies
5 Questions on Daily Challenges, Support, and Wellness...Living with blood cancer presents a unique set of challenges. From managing medication regimens to navigating emotional support, individuals with blood cancer face daily hurdles that impact their quality of...Reactions0reactionsComments0 comments
An Honest Account of Feelings...I’ve been really noticing my feelings lately. And as I look back on the last 17 years since I was first diagnosed with hairy cell leukemia, I realize that I...Reactions0reactionsComments0 comments
