FeaturedCAR T-Cell Therapy Experiences...Welcome to our forum dedicated to sharing experiences with CAR-T cell therapy. Whether you've undergone treatment or supported a loved one through the process, your story is valuable. By sharing...reactions5replies
Coping When Myeloma Keeps Letting You Know It’s There...As every patient can tell you, coping with a cancer diagnosis isn’t easy. In fact, for me, trying to cope with cancer to get my head around my initial blood...reactions5comments
Treating Blood Cancer: Don't Go on a Snipe Hunt!...When I was fourteen, I attended a weekend church retreat with other girls my age. Some of the older kids encouraged us to go on a snipe hunt. They left...reactions2comments
What coping strategies have been most effective for you in managing life with blood cancer?...Questions to help get the conversation started: "How do you maintain a positive outlook during challenging moments in your blood cancer journey?" "Have you found any specific activities or hobbies...reactions15repliesCopingNewly DiagnosedTips & Advice
Intimacy And Blood Cancer...Hearing the words “you have blood cancer” sent chills up and down my spine. Soon after that, the same cold chill impacted every facet of my future life, including any...reactionscomments
Fear Rigidity...I don’t know anyone with a cancer diagnosis that doesn’t experience fear, crippling doubt, and ample amounts of anxiety. I was diagnosed with chronic myeloid leukemia in 2011. I’ve only...reactions5comments
Memory Insecurity...My memory has always been great….well, okay, my long-term memory. I can't remember the short term, ironically. But anyway, it's definitely gotten worse since having blood cancer. When I started...reactions16comments
Looking for suggestions on side effects ...I’m diagnosed with MM in 2020. Recently I got a lytic lesion on my rib and the other day I coughed. It is hurting more now. How to manage a...reactions1replyTips & Advice
Onset Issues...Did your doctor ever express the possibility of an onset condition with multiple myeloma? It refers to cancers diagnosed at ages 20-50. The numbers seem to be rising, Are you...reactions2repliesAwarenessDiagnosisMultiple Myeloma
Blood Cancer Breakdown...I was relaxing in the sunroom one morning reading when the phone rang. The caller, on that occasion, turned out to be that all-too-familiar automated voice asking for confirmation on...reactionscomments
Dealing With the Inevitable Unpredictability Of Cancer...I’ve been thinking a lot lately about what comes next. It’s a pretty big subject when you live with a blood cancer or any of the chronic cancers, really. What’s...reactionscomments
Bills, Bills, Bills ~Destiny Child...Bills, bills, and bills uuuggghhhh!!!! That's the song that has been running through my head today. You may have heard it before chemotherapy does not just take the bad cells...reactionscomments
Blood Cancer Treatment Experiences 🩸💪...Living with blood cancer? From chemo to experimental therapies, we want to know what you've tried and how it's worked out. Let's swap stories and support each other through the...reactions10repliesTreatmentTips & Advice
Working With Cancer & How Employers Play Games...Lately, I have been seeing talk about working with cancer. It’s something more than a few of us try to do, and for some of us it’s a must-do in...reactions2comments
Remission Since 2020...Hi, my name is Harold. I've been I remission since 2020. All I can say God is good...reactions1comment
We Are Not Our Disease...I have been looking for a condo for a couple of years. I’m an empty nester, divorced, and living alone in a house that is too big for me. Part...reactions1comment
Advocate to Advocate Live...I was chosen again to attend HealtheVoices conference. What makes this particular conference unique is the safe meeting place for a wide range of patient leaders/advocates. Most times, a lot...reactions2comments
How do you balance being informed VS overwhelmed? ...How do you navigate the balance between staying informed about your condition and avoiding overwhelming yourself with medical information or statistics?...reactions15repliesTips & AdviceNewly Diagnosed
Learning When Baby Steps are Enough With CML...Having blood cancer, sometimes I feel like my movements are stifled by quicksand. There are ups and downs in life for everyone. But trudging through nine years with chronic myeloid...reactions5comments
Being a Caregiver Can Be Tough...Taking care of someone is always difficult. Of course the amount of difficulty depends on the ability of the recipient, but no matter what, it still takes a toll on...reactions2comments
