Anyone aware of possible link between CLL and AVN of hip?
I have had CLL for 5 years. I was treated for 18 months with Imbruvica. I requested to discontinue the drug due to severe bone and joint pain. Discontinuing Imbruvica helped me determine the specific cause of my pain, leading to a diagnosis of Avascular Necrosis of the femoral head in my right hip, which lead to a total hip replacement. Now, 15 months post surgery I am diagnosed with AVN in my left hip. I am scheduled for total hip replacement in five weeks.
My question is, does anyone know of a possible link between CLL and AVN, possibly also linked to Imbruvica? I have no other causal factors for AVN so I am searching for a possible cause and hopeful intervention to protect additional bones against AVN.
have you discussed this with your healthcare team? I'm guessing this is a tough one to get answers for. I have no experience with this drug, so I'm unable to answer your question. But it sounds like you are very in tune with what is going on in your body. Kudos to you for listening and speaking up. Wishing you a speedy recovery with your hip replacement. Keep us posted on how you're doing.
Angie (Team Member)
I have cml and after a few months the pain in my.hip and femer I was on heavy duty meds. They changed my meds because of it but still not much relief.
