Living with Blood Cancer: Overcoming Judgement...Have you ever felt judged for having cancer? There’s a red flag I’ve noticed that tells me when a conversation might not go over well. It starts with a simple...Reactions0reactionsComments0 comments
Understanding Non-Compliance: My Journey with Blood Cancer...Dealing with blood cancer is challenging enough without facing misunderstandings and misjudgments. Here’s my story of being perceived as non-compliant to treatment, and what I did about it. When I...Reactions0reactionsComments2 comments
CML...Hi, I was diagnosed with CML December of 23! What a shock it was when my doctor told me! Never thought I would be in the situation that I am...Reactions0reactionsComments0 comments
Embracing a New Normal by Overcoming Feelings of Failure...As cancer patients, we often have to come to grips with “the new normal.” For us, it starts soon after diagnosis. Eventually, and probably, the sooner the better, we have...Reactions0reactionsComments0 comments
My Message of Hope...This year, I had a slightly different attitude towards blood cancer awareness month, specifically CML Awareness Day (September 22), and decided to do an Instagram live about it. On my...Reactions0reactionsComments0 comments
CAR T and the Fatigue Fallout...When I was going into the trial for CAR T-cell therapy, I knew it required a seven-day hospital stay. I told the admitting nurse that I would be out of...Reactions0reactionsComments0 comments
Did you experience fatigue after receiving CAR T-Cell Therapy?..."My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and asking my oncologist when it would let up...Reactions0reactionsComments1 repliesSide Effects
What Do You Have To Prove?...As the youngest sibling, I spent a lifetime trying to keep up with the accomplishments, expectations, and approval of my older sisters. As a mom, I have found myself wanting...Reactions0reactionsComments0 comments
Paid research opportunity for cancer patients and their family caregivers!...NYU Culture, Emotion, and Health Lab are inviting cancer patient-family caregiver pairs to participate in an online research study to share their cancer-related experiences in the United States. They are...Reactions0reactionsComments0 repliesResearch & Clinical Trials
The Importance of Sleep...We sleep for one-third of our lives. That’s how important sleep is. However, Dr. Marishka Brown, a sleep expert at the National Institutes of Health, points out that sleep is...Reactions0reactionsComments3 comments
Anyone aware of possible link between CLL and AVN of hip?...I have had CLL for 5 years. I was treated for 18 months with Imbruvica. I requested to discontinue the drug due to severe bone and joint pain. Discontinuing Imbruvica...Reactions0reactionsComments3 repliesLeukemia
Being diagnosed with a rare Blood Cancer....It was enough being diagnosed with Lupus and Sjogrens and Fibromyalgia and RA. I pretty much knew I've had these since a very young child. Loosing loved ones n friends...Reactions0reactionsComments2 repliesMental HealthDiagnosis
Newly Diagnosed with Polycythemia Vera...Last month, I received an email from my doctor (I'm in an HMO) that flatly stated my blood work showed I had a JAK2 mutation, indicating I have PV and...Reactions0reactionsComments3 comments
To Share a Diagnosis or Not...A blood cancer diagnosis is a very private thing. It is truly life-changing. You are in the battle for your life. You don’t know how others will react if you...Reactions0reactionsComments4 comments
The Importance of Health Literacy for People With Blood Cancer...Health literacy is a powerful tool that can improve the quality of life for people with blood cancer. Blood cancer is a type of cancer that affects the cells in...Reactions0reactionsComments0 comments
From Drugstore Gloom To a Happier Place...It was a dark and stormy night... ...inside my head at the CVS pharmacy in Granby, Mass. I needed my prescription strength fluoride toothpaste. The pharmacist wouldn’t give it to...Reactions0reactionsComments2 comments
Blood Cancer Awareness Month Giveaway 2024 - CLOSED...This giveaway has closed. Winners are being chosen and notified the week of October 7th, 2024! Thank you for participating, and good luck! In honor of Blood Cancer Awareness Month...Reactions0reactionsComments2 comments
Finding Support in Unexpected Places...Sometimes, support comes from places we least expect—whether it's a casual acquaintance, an online community, or a new hobby that brings you peace. Have you found support in an unexpected...Reactions0reactionsComments2 repliesFriends & FamilyCopingMental Health
Multiple myloma ...Been diagnosed 8 years this Oct I am 55 years old. Is there anything I am missing to do and treatment...Reactions0reactionsComments1 repliesDiagnosisDiet & NutritionDepression
Blood Cancer Awareness Month 2024: Support Circle...As we kick off Blood Cancer Awareness Month, we’re focusing on the theme of "Support Circle." Navigating blood cancer can be overwhelming, but having a solid support system can make...Reactions0reactionsComments1 comments
