Why People Play Down Blood Cancer and How To Deal With It...There’s been a lot of talk lately about having our cancer diagnosis minimized, and I have to say that I have experienced it myself and know many people have. Why...Reactions0reactionsComments2 comments
Using Values to Navigate Life Transitions After a Cancer Diagnosis...A cancer diagnosis is a definitive change catalyst. After receiving their news, patients often find their lives bouncing through tumultuous change, particularly at the very beginning of their cancer journeys...Reactions0reactionsComments0 comments
My Quest to Find My Pre-Leukemia Self...As a writer, some of my best ideas and thoughts arrive at unexpected times. Such was the case today when I was driving home from occupational therapy. This is my...Reactions0reactionsComments0 comments
My Support System...I’m very lucky in that I have an amazing support system. It’s something that was very apparent from the moment I was diagnosed. Friends taking me to the hospital. Visitors...Reactions0reactionsComments0 comments
Tolerating Testing and Treatment...When I was a kid, needles were terrifying! It was common for me to kick, scream, and fight when told I needed a shot or blood draw. Yes, this actually...Reactions0reactionsComments2 comments
Change and More Stress Are Coming...Today has also been really hard for a variety of reasons. My toddler has needed a lot of attention and focus after spending 3 nights with her father. Things with...Reactions0reactionsComments0 comments
Preventive Medicine and Multiple Myeloma Advocacy...I had the pleasure of attending this year’s ACPM (American College of Preventive Medicine) conference in Washington DC. In a nutshell, ACPM’s main mission is to modify the healthcare system...Reactions0reactionsComments0 comments
The "Good" Cancer...I have heard some people say non-Hodgkins follicular lymphoma (FL), is the “good” kind of cancer. I mean yes and no. I don’t think there is any “good” cancer. With FL...Reactions0reactionsComments2 comments
Multiple Myeloma Diagnosis...Summer of 2023, I started having extreme back pain and hip pain. I bent over in my kitchen to pick something up, and I couldn't get back up again. I...Reactions0reactionsComments0 comments
Chronic Questioning With Chronic Myeloid Leukemia...It is easy for others to forget the chronic nature of chronic myeloid leukemia (CML), but I do not have the luxury of forgetting. In October, I will mark the...Reactions0reactionsComments2 comments
Don't know put for them to take blood every 2 months ...Why did my numbers go back up after 9 months, they where down to 45...Reactions0reactionsComments4 repliesDiet & NutritionDiagnosis
Are your pharmacists helpful or unhelpful?...Living with blood cancer usually involves medicine - plenty of it. Are your pharmacists sympathetic to your needs?...Reactions0reactionsComments0 repliesHealthcare Team
Dear Blood Cancer, I Have a Bone To Pick With You!...You came uninvited, at the worst of times, Bringing with you mountains too steep to climb. I hate you for the fear, the hurt, the tears, For how you touch...Reactions0reactionsComments0 comments
Chemo, Radiation, and HURRICANES?!? Oh My!!...Recently I've had the pleasure of going through yet another hurricane in my lifetime. I was raised mainly in Florida, so hurricanes are a normal occurrence. But since moving to...Reactions0reactionsComments5 comments
CLL...My journey started in May of 2019. Through blood tests, my PCP suspected blood cancer. A BMB showed 70% affected, and I started treatment with my spleen enlarged at 21...Reactions0reactionsComments1 comments
Uncertainty...I was feeling very tired and weak. I’d sleep so much every day, and I had bruises on my shoulders and was out of breath for no reason. Then one...Reactions0reactionsComments4 comments
My road to recovery...My name is Anna, and I was diagnosed with stage four non-Hodgkin’s lymphoma, double cell, in November 2022. I underwent six rounds of R-CHOP and two bone marrow biopsies. I...Reactions0reactionsComments3 comments
Still here...I have PV and ET with the JAK2 mutation. My blood work has been really low, but my hematocrit has started to rise again. It's getting close to 45. It...Reactions0reactionsComments0 comments
CLL you picked the wrong person...I had a sore throat during COVID. Couldn't see many doctors in person back then. My ENT did test after test, and I finally said I'd know if I'd had...Reactions0reactionsComments0 comments