Understanding Bone Marrow Biopsies...A bone marrow biopsy is a procedure that is commonly used to diagnose and manage blood cancer. Bone marrow is the soft, spongy tissue located inside your bones. A biopsy...reactionscomments
The Complexity of Remission Remorse...The displacement one may feel when diagnosed with blood cancer, in my case, specifically, multiple myeloma, was/can be stifling. The way you experience normality and your safe space changes when...reactionscomments
Which treatment side effects have had the biggest impact on your confidence?...-Physical changes (e.g., hair loss, weight changes) -Emotional challenges (e.g., anxiety, depression) -Lifestyle impacts (e.g., fatigue, mobility issues) -Other...reactions23repliesSymptomsSide EffectsNewly Diagnosed
CAR-T Torch Bearer...I just recently passed my labs and CT scan six and a half years after entering into a clinical trial for an aggressive form of follicular non-Hodgkin lymphoma (FL). FL...reactionscomments
Tip formerly diagnosed ...The most important thing you can do is ADVOCATE for YOURSELF. YOU are the one who is sick, not your DOCTOR. Yes your doctor is the expert but get second...reactions1reply
From Kidney Stones to a Cancer Diagnosis...My story—or journey, as I prefer to call it—began in December 2023. I was having severe pain in my right kidney area, which led me to the emergency room for...reactions2comments
Regaining Patient Confidence When Battling Cancer...Cancer patient confidence can be a fickle thing. Like the Chairman, Frank Sinatra, sang in “That’s Life,” you might be “riding high in April, shot down in May.” For patients...reactions6comments
What’s One Word You’d Use to Describe Reading Your Pathology Report?...This should be fun....reactions27repliesAwarenessHealthcare Team
Let's Celebrate!...My daughter was a volleyball player. Throughout her teen years, we traveled with her teams to watch them compete. One of the girls who played on both her high school...reactionscomments
Making CML the Headline...I recently had a follow-up telehealth visit with my primary doctor. She asked me about any health concerns I was having and what she could do to help. First, we...reactions2comments
What My Oncologist Fails To See...In one form or another, I have been in the communications business since college, both as an on-air talent and later as an adjunct communications lecturer at several universities. My...reactions5comments
Answer Polls About Relapsed Refractory Multiple Myeloma...When living with relapsed refractory multiple myeloma (RRMM), navigating treatment decisions and coping with challenges are a part of the experience. We’re exploring key topics like treatment journeys, managing side...reactionscomments
The Roller Coaster Ride to CAR-T Cell Therapy...Sometimes, I look back on my cancer journey and compare it to a roller coaster ride. There were so many ups and downs, twists, turns, and bumps on the ride...reactions2comments
Understanding Relapsed Refractory Multiple Myeloma...Relapsed refractory multiple myeloma (RRMM) is a challenging form of multiple myeloma. It is very common for people with multiple myeloma to have a relapse. And there are times when...reactionscomments
Understanding Your Pathology Report...Living with relapsed refractory multiple myeloma (RRMM) can be scary and worrisome. The words used by your doctor may be confusing. The medical terms may not be familiar to you...reactionscomments
Improving Quality of Life for People With Relapsed Refractory Multiple Myeloma...Relapsed refractory multiple myeloma (RRMM) is a challenging condition. Living with it can feel overwhelming. However, there are ways to improve your quality of life. By focusing on palliative care...reactionscomments
Medical PTSD in People With Cancer...For many people, cancer is the worst health fear of all. Often, just the word "cancer" leads people to imagine hair loss, chemotherapy, nausea, and other physical symptoms. However, the...reactionscomments
Insights from Our Community Polls...In a series of recent polls, our community has spoken up, revealing that pain, the term "good cancer," communication with doctors, and confusion are common threads in the experience of...reactionscomments
