Active 5 days agoHow has blood cancer affected your self confidence?...Blood cancer can have a big impact on us emotionally. How has it affected your self confidence? Tell us below....reactions3repliesCoping
Blood Cancer: A Lesson Learned...When I was first diagnosed with blood cancer, my oncologist took the time to lay out what the anticipated treatment plan might look like. He was anticipating my receiving 6...reactions3comments
Mycosis fungoides...I was diagnosed in the late 1990s and my treatments have always been geared to combat the bad skin conditions. I once had on about 25% of my body covered...reactionscomments
Who do you tell?...I am diagnosed with Leukemia and my life is in shambles. What do I do? What treatment? What will treatment do to me? Will I be able to support my...reactions3comments
Not the way I expected...In July of 2020 I was in the emergency room with a mental health issue and because it was during the pandemic I was sitting on a gurney in the...reactionscomments
How Exercise Helped Me Get Through Leukemia Treatment...As a baby, I must have found my crib boring. I tried to climb out of it as though it was my personal jungle gym. My parents put extensions on...reactionscomments
Natural Disasters With Blood Cancer...When you have blood cancer, you will likely set up a plan of treatment with your doctor. Now, I was raised mainly in Florida, so hurricanes are a normal occurrence...reactions2comments
Understanding Bone Marrow Biopsies...A bone marrow biopsy is a procedure that is commonly used to diagnose and manage blood cancer. Bone marrow is the soft, spongy tissue located inside your bones. A biopsy...reactionscomments
The Complexity of Remission Remorse...The displacement one may feel when diagnosed with blood cancer, in my case, specifically, multiple myeloma, was/can be stifling. The way you experience normality and your safe space changes when...reactionscomments
Which treatment side effects have had the biggest impact on your confidence?...-Physical changes (e.g., hair loss, weight changes) -Emotional challenges (e.g., anxiety, depression) -Lifestyle impacts (e.g., fatigue, mobility issues) -Other...reactions21repliesSide EffectsSymptomsNewly Diagnosed
CAR-T Torch Bearer...I just recently passed my labs and CT scan six and a half years after entering into a clinical trial for an aggressive form of follicular non-Hodgkin lymphoma (FL). FL...reactionscomments
Tip formerly diagnosed ...The most important thing you can do is ADVOCATE for YOURSELF. YOU are the one who is sick, not your DOCTOR. Yes your doctor is the expert but get second...reactions1reply
From Kidney Stones to a Cancer Diagnosis...My story—or journey, as I prefer to call it—began in December 2023. I was having severe pain in my right kidney area, which led me to the emergency room for...reactions2comments
Regaining Patient Confidence When Battling Cancer...Cancer patient confidence can be a fickle thing. Like the Chairman, Frank Sinatra, sang in “That’s Life,” you might be “riding high in April, shot down in May.” For patients...reactions6comments
What’s One Word You’d Use to Describe Reading Your Pathology Report?...This should be fun....reactions27repliesAwarenessHealthcare Team
Let's Celebrate!...My daughter was a volleyball player. Throughout her teen years, we traveled with her teams to watch them compete. One of the girls who played on both her high school...reactionscomments
Making CML the Headline...I recently had a follow-up telehealth visit with my primary doctor. She asked me about any health concerns I was having and what she could do to help. First, we...reactions2comments
What My Oncologist Fails To See...In one form or another, I have been in the communications business since college, both as an on-air talent and later as an adjunct communications lecturer at several universities. My...reactions5comments
