I'm 43 and I've experienced intermittent double vision, extreme muscle weakness (to the point I'm now in a wheelchair) and sensory changes in my feet and lower legs. I have extreme fatigue and vomit on regular occasions that remain inexplicable. I'm seeing neurology for a possible neuromuscular disorder. However, my bloods are also abnormal. I have pancytopenia, anemia, macrocytosis, and my neutrophils hover around 1 and my haemaglobin is around 105. My results are abnormal, but have stabilised as abnormal. I've had B12 deficiency ruled out. I don't drink alcohol and ab scans show liver and kidneys are normal. Although my GGT is 133 (moderately high). Also had MS and myasthenia gravis ruled out.
My question is, as I've now seen haematologist and he's concerned about my bloods, does anyone have experience of neuromuscular symptoms with MDS or Leukemia? I'm having a bone biopsy on 27 January, so I know I have to be patient, but my mind is going overboard worrying about a blood cancer diagnosis. Any advice and guidance truly welcome. Thanks, Victoria.