NLPHL
This is definitely a longshot, but I have never met another person with my type of disease. Would there happen to be anybody else out there that has Nodular lymphocyte predominant Hodgkin’s lymphoma?
Well, even though we do have many thousands of members with all different kidns of conditions we, unfortunately, do not have any articles directly on NLPHL. As you said it makes up something like less than 5% of blood cancers. I can tell you that, myself, I had anaplastic large cell B lymphoma, NH, so even though it's not the same I do know many of the things you are going through/have gone through. So if we can help with any of that, let us know. You are definitely not alone in this! Keep on keepin' on, DPM i’m glad to know that there is a community of people with types of blood cancer, and that I am not alone in this journey. I don’t know if I will ever meet another person with NLPHL but I am always open to any kind of perspective or knowledge. Don't ever hesitate to come and share! We will always be here! DPM
I have myelofibrosis w chronic anemia.
You certainly at not alone, just like in Adam's case above, many of our community members suffer with myelofibrosis as you can see! https://blood-cancer.com/stories/can-i-get-a-light If there's anything we can do to help, let us know. Keep on keepin' on, DPM
