CLL/SLL

Join the conversation

1. 

   Daniel Malito Moderator

   <p><inline-mention user-id="3654179" username="therese"/> I also had about three mis-diagnoses before they finally gave me the correct lymphoma diagnosis. It wasn’t like they wrong ones were good either, two were terminal! It was an emotional rollercoaster, so I get it. Keep on keepin’ on, DPM</p>

   reactions

   reply
2. 

   Yolanda Brunson-Sarrabo Moderator & Contributor

   <p>I&#39;m so sorry for this journey starting off with hiccups. It can be gloomy in general, but when the doctors can&#39;t get it right... well, it&#39;s upsetting. Continue to hang strong in this watch and wait for stage. Best your way!</p>

   reactions

   reply
3. 

   harryma275 Member

   <p>I was diagnosed with CLL/SLL in January 2018 by an oncologist. What sent me to the doctor originally was hearing loss in my left ear. Still unimproved and nasal endoscopy revealed lymphoma. I’ve also been seen by a pulmonologist and an ENT. I’ve had I don’t know how many CT scans, endoscopies, biopsies and blood studies done. I’ve had 4 rounds of chemo. I feel uncertain, like the doctors are unsure. I’d like to have a clear diagnosis and prognosis.</p>

   reactions

   reply
4. 

   Jim Smith Moderator & Contributor

   <p><inline-mention user-id="3654179" username="therese"/> I know exactly what you mean. I have CLL and have been in the Wait and Watch stage since 2009. <br> <br> When you said knowing you have cancer and yet not feeling sick is hard, it was like you were speaking for me. That is exactly how I feel. As a regular writer on this site, I almost feel guilty sometimes having yet to go through the difficulties others are facing. <br> <br> Also, for those of us who don&#39;t yet feel their disease, it&#39;s like there is an invisible enemy lurking within us. But stay strong. Whether he makes himself known or not, you will not be defeated as long as you hold onto Hope and Joy every day. <br> <br> Godspeed, Therese.</p>

   reactions

   reply