Answer Polls About Relapsed Refractory Multiple Myeloma...When living with relapsed refractory multiple myeloma (RRMM), navigating treatment decisions and coping with challenges are a part of the experience. We’re exploring key topics like treatment journeys, managing side...Reactions0reactionsComments0 comments
The Roller Coaster Ride to CAR-T Cell Therapy...Sometimes, I look back on my cancer journey and compare it to a roller coaster ride. There were so many ups and downs, twists, turns, and bumps on the ride...Reactions0reactionsComments1 comments
Understanding Relapsed Refractory Multiple Myeloma...Relapsed refractory multiple myeloma (RRMM) is a challenging form of multiple myeloma. It is very common for people with multiple myeloma to have a relapse. And there are times when...Reactions0reactionsComments0 comments
Understanding Your Pathology Report...Living with relapsed refractory multiple myeloma (RRMM) can be scary and worrisome. The words used by your doctor may be confusing. The medical terms may not be familiar to you...Reactions0reactionsComments0 comments
Improving Quality of Life for People With Relapsed Refractory Multiple Myeloma...Relapsed refractory multiple myeloma (RRMM) is a challenging condition. Living with it can feel overwhelming. However, there are ways to improve your quality of life. By focusing on palliative care...Reactions0reactionsComments0 comments
Medical PTSD in People With Cancer...For many people, cancer is the worst health fear of all. Often, just the word "cancer" leads people to imagine hair loss, chemotherapy, nausea, and other physical symptoms. However, the...Reactions0reactionsComments0 comments
Insights from Our Community Polls...In a series of recent polls, our community has spoken up, revealing that pain, the term "good cancer," communication with doctors, and confusion are common threads in the experience of...Reactions0reactionsComments0 comments
What Are Your Best Ways to Say No During the Holidays?...Saying no during the holidays can feel hard, but protecting your energy while managing treatment and fatigue is often necessary. Do you have tips or phrases that help you say...Reactions0reactionsComments0 repliesTips & AdviceMental Health
Finding Meaning Through Stories and Personal Growth...Many people find comfort, inspiration, or new perspectives through stories—whether in TV shows, books, or movies. These stories can take on even more significance when revisited, helping us process our...Reactions0reactionsComments0 repliesMental Health
Navigating Health Insurance and Medicare...Understanding health insurance options like Medicare can be overwhelming. Many face complex decisions about coverage, co-pays, and how different plans impact their treatment. This forum is a space to discuss...Reactions0reactionsComments0 repliesInsurance & DisabilityTips & Advice
Navigating Disability Benefits and Health Challenges...The process of applying for, maintaining, and potentially losing disability benefits can be a stressful and overwhelming experience. Many people living with blood cancer or other chronic illnesses face difficulties...Reactions0reactionsComments0 repliesInsurance & DisabilityTips & Advice
Active 6 days agoManaging Holiday Stress...How do you usually manage holiday stress with cancer?...Reactions0reactionsComments3 repliesCopingMental HealthTips & Advice
Music Heals...“Would you like for me to play you a few songs?” I ask as I enter a patient’s room at Northeast Methodist Hospital. A lady lying on the bed wrapped...Reactions0reactionsComments4 comments
Dealing With An Oncologist’s Somewhat Crude Delivery Of Disturbing News?...TEST RESULTS - Every two months I have my blood work, two weeks later I meet with my hematologist to discuss in person my results. Last week I was scheduled...Reactions0reactionsComments2 replies
Silent Voices of Blood Cancer...When I meet with fellow blood cancer patients, the conversation often turns to the many physical trials and challenges we can face, along with discussions about the countless and complex...Reactions0reactionsComments0 comments
If your treatment failed, did you start on another one?...If you have had to stop one line of treatment and try another, why? Please tell us about your treatment journey. How did you cope?...Reactions0reactionsComments0 replies
After Treatment Ends, Dealing with Unexpected Challenges...When I came home from the hospital after having my first child through Caesarean section, my mother had set her usual beautiful table to celebrate. I burst into tears and...Reactions0reactionsComments3 comments
Active yesterdayHow has brain fog impacted your daily life during treatment?...In a recent poll, many people living with blood cancer reported being significantly impacted by brain fog and cognitive impairment as treatment side effects. These issues can affect daily life...Reactions0reactionsComments2 repliesSide EffectsTips & Advice
The Good Cancer? ...In a recent poll, the community overwhelmingly agreed that the term 'good cancer' is misleading and dismissive. How do you react when someone uses that term about your blood cancer?...Reactions0reactionsComments0 repliesTips & AdviceCoping
Bone Pain and Blood Cancer...In a recent community poll about how blood cancer has impacted your bones, the most common response was pain. Other responses included fractures, weakness, loss of density, and even no...Reactions0reactionsComments0 repliesSymptomsSide EffectsTips & Advice