Active todayOnset Issues...Did your doctor ever express the possibility of an onset condition with multiple myeloma? It refers to cancers diagnosed at ages 20-50. The numbers seem to be rising, Are you...Reactions 0 reactions Comments0 repliesAwarenessDiagnosisMultiple Myeloma
Blood Cancer Breakdown...I was relaxing in the sunroom one morning reading when the phone rang. The caller, on that occasion, turned out to be that all-too-familiar automated voice asking for confirmation on... By Dennis Golden3 min readBookmark for laterReactions 0 reactions Comments0 comments
Bills, Bills, Bills ~Destiny Child...Bills, bills, and bills uuuggghhhh!!!! That's the song that has been running through my head today. You may have heard it before chemotherapy does not just take the bad cells... By Amanda Brunson1 min readBookmark for laterReactions 0 reactions Comments0 comments
Active 5 days agoBlood Cancer Treatment Experiences 🩸💪...Living with blood cancer? From chemo to experimental therapies, we want to know what you've tried and how it's worked out. Let's swap stories and support each other through the...Reactions 0 reactions Comments0 repliesTreatmentTips & Advice
Remission Since 2020...Hi, my name is Harold. I've been I remission since 2020. All I can say God is good... By CommunityMembereb0e741 min readBookmark for laterReactions 0 reactions Comments0 comments
We Are Not Our Disease...I have been looking for a condo for a couple of years. I’m an empty nester, divorced, and living alone in a house that is too big for me. Part... By Ronni Gordon3 min readBookmark for laterReactions 0 reactions Comments1 comments
Advocate to Advocate Live...I was chosen again to attend HealtheVoices conference. What makes this particular conference unique is the safe meeting place for a wide range of patient leaders/advocates. Most times, a lot... By Yolanda Brunson-Sarrabo2 min readBookmark for laterReactions 0 reactions Comments2 comments
Active todayHow do you balance being informed VS overwhelmed? ...How do you navigate the balance between staying informed about your condition and avoiding overwhelming yourself with medical information or statistics?...Reactions 0 reactions Comments15 repliesTips & AdviceNewly Diagnosed
Learning When Baby Steps are Enough With CML...Having blood cancer, sometimes I feel like my movements are stifled by quicksand. There are ups and downs in life for everyone. But trudging through nine years with chronic myeloid... By Susan Gonsalves3 min readBookmark for laterReactions 0 reactions Comments0 comments
Being a Caregiver Can Be Tough...Taking care of someone is always difficult. Of course the amount of difficulty depends on the ability of the recipient, but no matter what, it still takes a toll on... By Ann Harper3 min readBookmark for laterReactions 0 reactions Comments2 comments
Blue Toes...I have had Polycythemia Vera for four years now and I'm suffering from Polycythemia toes or Blue Toes. The big toes on each foot are swollen, red, raw and even...Reactions 0 reactions Comments3 replies
5 Questions on Daily Challenges, Support, and Wellness...Living with blood cancer presents a unique set of challenges. From managing medication regimens to navigating emotional support, individuals with blood cancer face daily hurdles that impact their quality of... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
An Honest Account of Feelings...I’ve been really noticing my feelings lately. And as I look back on the last 17 years since I was first diagnosed with hairy cell leukemia, I realize that I... By Angie Netterville3 min readBookmark for laterReactions 0 reactions Comments0 comments
Spleen There...I was diagnosed with leukemia in 2011. There were a few symptoms that my doctor had followed up on. Many of the symptoms were pretty vague and persistent. The one... By Maria Valente3 min readBookmark for laterReactions 0 reactions Comments2 comments
From Cancer Coming A-Calling to Cancer Becoming a Calling...When cancer first came calling, I wasn’t quite sure how to react or respond. It took a few months, but now I am proud to say my cancer has become... By Ray Hartjen4 min readBookmark for laterReactions 0 reactions Comments0 comments
Chemo - If you could magically remove one side-effect, what would it be?...Chemo, even when it's good, it's still pretty bad. So I am asking - if you could magically remove one side effect of the treatment, what would it be? For...Reactions 0 reactions Comments2 repliesCoping
Gaining Control of Blood-Cancer...One of the more stressful discoveries surrounding my encounter with blood cancer, aside from the initial shock, treatment protocols, and the physical/emotional reactions to chemotherapy, was an awareness of a... By Dennis Golden3 min readBookmark for laterReactions 0 reactions Comments0 comments
Nesting and Having A Recovery Space...One of the recent topics being talked about around here is making a nest, and I have to say I’m all for it. Now, In Katelynn’s wonderful article, they talk... By Daniel Malito4 min readBookmark for laterReactions 0 reactions Comments2 comments
Try to find ways to cope.....Taking jakifi is a wonder medicine he feels so much better...Reactions 0 reactions Comments1 repliesTips & AdviceCopingCaregivers
Active 6 days agoWhat's one piece of advice you would give to someone newly diagnosed with blood cancer? ...Share your advice below!...Reactions 0 reactions Comments78 repliesNewly DiagnosedTips & AdviceDiagnosis
