Active todayTip formerly diagnosed ...The most important thing you can do is ADVOCATE for YOURSELF. YOU are the one who is sick, not your DOCTOR. Yes your doctor is the expert but get second...Reactions0reactionsComments0 replies
From Kidney Stones to a Cancer Diagnosis...My story—or journey, as I prefer to call it—began in December 2023. I was having severe pain in my right kidney area, which led me to the emergency room for...Reactions0reactionsComments0 comments
Regaining Patient Confidence When Battling Cancer...Cancer patient confidence can be a fickle thing. Like the Chairman, Frank Sinatra, sang in “That’s Life,” you might be “riding high in April, shot down in May.” For patients...Reactions0reactionsComments2 comments
Active 4 days agoWhat’s One Word You’d Use to Describe Reading Your Pathology Report?...This should be fun....Reactions0reactionsComments17 repliesAwarenessHealthcare Team
Let's Celebrate!...My daughter was a volleyball player. Throughout her teen years, we traveled with her teams to watch them compete. One of the girls who played on both her high school...Reactions0reactionsComments0 comments
Making CML the Headline...I recently had a follow-up telehealth visit with my primary doctor. She asked me about any health concerns I was having and what she could do to help. First, we...Reactions0reactionsComments2 comments
What My Oncologist Fails To See...In one form or another, I have been in the communications business since college, both as an on-air talent and later as an adjunct communications lecturer at several universities. My...Reactions0reactionsComments0 comments
Answer Polls About Relapsed Refractory Multiple Myeloma...When living with relapsed refractory multiple myeloma (RRMM), navigating treatment decisions and coping with challenges are a part of the experience. We’re exploring key topics like treatment journeys, managing side...Reactions0reactionsComments0 comments
The Roller Coaster Ride to CAR-T Cell Therapy...Sometimes, I look back on my cancer journey and compare it to a roller coaster ride. There were so many ups and downs, twists, turns, and bumps on the ride...Reactions0reactionsComments2 comments
Understanding Relapsed Refractory Multiple Myeloma...Relapsed refractory multiple myeloma (RRMM) is a challenging form of multiple myeloma. It is very common for people with multiple myeloma to have a relapse. And there are times when...Reactions0reactionsComments0 comments
Understanding Your Pathology Report...Living with relapsed refractory multiple myeloma (RRMM) can be scary and worrisome. The words used by your doctor may be confusing. The medical terms may not be familiar to you...Reactions0reactionsComments0 comments
Improving Quality of Life for People With Relapsed Refractory Multiple Myeloma...Relapsed refractory multiple myeloma (RRMM) is a challenging condition. Living with it can feel overwhelming. However, there are ways to improve your quality of life. By focusing on palliative care...Reactions0reactionsComments0 comments
Medical PTSD in People With Cancer...For many people, cancer is the worst health fear of all. Often, just the word "cancer" leads people to imagine hair loss, chemotherapy, nausea, and other physical symptoms. However, the...Reactions0reactionsComments0 comments
Insights from Our Community Polls...In a series of recent polls, our community has spoken up, revealing that pain, the term "good cancer," communication with doctors, and confusion are common threads in the experience of...Reactions0reactionsComments0 comments
What Are Your Best Ways to Say No During the Holidays?...Saying no during the holidays can feel hard, but protecting your energy while managing treatment and fatigue is often necessary. Do you have tips or phrases that help you say...Reactions0reactionsComments0 repliesTips & AdviceMental Health
Finding Meaning Through Stories and Personal Growth...Many people find comfort, inspiration, or new perspectives through stories—whether in TV shows, books, or movies. These stories can take on even more significance when revisited, helping us process our...Reactions0reactionsComments0 repliesMental Health
Navigating Health Insurance and Medicare...Understanding health insurance options like Medicare can be overwhelming. Many face complex decisions about coverage, co-pays, and how different plans impact their treatment. This forum is a space to discuss...Reactions0reactionsComments0 repliesInsurance & DisabilityTips & Advice
Navigating Disability Benefits and Health Challenges...The process of applying for, maintaining, and potentially losing disability benefits can be a stressful and overwhelming experience. Many people living with blood cancer or other chronic illnesses face difficulties...Reactions0reactionsComments0 repliesInsurance & DisabilityTips & Advice
