My Unsuccessful Fight Against MDS...I was having frequent infections, and my pulmonologist saw that my blood counts were going down, suggesting me to see a hematologist. I consulted him and after my bone marrow...Reactions0reactionsComments0 comments
Valarie Traynham...Valarie Traynham is a multiple myeloma patient advocate, research advocate, and community leader. She was diagnosed with multiple myeloma in 2015 and has since dedicated herself to raising awareness, especially...
Active 5 days agoHow has blood cancer affected your self confidence?...Blood cancer can have a big impact on us emotionally. How has it affected your self confidence? Tell us below....Reactions0reactionsComments3 repliesCoping
Blood Cancer: A Lesson Learned...When I was first diagnosed with blood cancer, my oncologist took the time to lay out what the anticipated treatment plan might look like. He was anticipating my receiving 6...Reactions0reactionsComments0 comments
Mycosis fungoides...I was diagnosed in the late 1990s and my treatments have always been geared to combat the bad skin conditions. I once had on about 25% of my body covered...Reactions0reactionsComments0 comments
Who do you tell?...I am diagnosed with Leukemia and my life is in shambles. What do I do? What treatment? What will treatment do to me? Will I be able to support my...Reactions0reactionsComments3 comments
Not the way I expected...In July of 2020 I was in the emergency room with a mental health issue and because it was during the pandemic I was sitting on a gurney in the...Reactions0reactionsComments0 comments
How Exercise Helped Me Get Through Leukemia Treatment...As a baby, I must have found my crib boring. I tried to climb out of it as though it was my personal jungle gym. My parents put extensions on...Reactions0reactionsComments0 comments
Natural Disasters With Blood Cancer...When you have blood cancer, you will likely set up a plan of treatment with your doctor. Now, I was raised mainly in Florida, so hurricanes are a normal occurrence...Reactions0reactionsComments2 comments
Understanding Bone Marrow Biopsies...A bone marrow biopsy is a procedure that is commonly used to diagnose and manage blood cancer. Bone marrow is the soft, spongy tissue located inside your bones. A biopsy...Reactions0reactionsComments0 comments
The Complexity of Remission Remorse...The displacement one may feel when diagnosed with blood cancer, in my case, specifically, multiple myeloma, was/can be stifling. The way you experience normality and your safe space changes when...Reactions0reactionsComments0 comments
Which treatment side effects have had the biggest impact on your confidence?...-Physical changes (e.g., hair loss, weight changes) -Emotional challenges (e.g., anxiety, depression) -Lifestyle impacts (e.g., fatigue, mobility issues) -Other...Reactions0reactionsComments19 repliesSide EffectsSymptomsNewly Diagnosed
CAR-T Torch Bearer...I just recently passed my labs and CT scan six and a half years after entering into a clinical trial for an aggressive form of follicular non-Hodgkin lymphoma (FL). FL...Reactions0reactionsComments0 comments
Tip formerly diagnosed ...The most important thing you can do is ADVOCATE for YOURSELF. YOU are the one who is sick, not your DOCTOR. Yes your doctor is the expert but get second...Reactions0reactionsComments1 replies
From Kidney Stones to a Cancer Diagnosis...My story—or journey, as I prefer to call it—began in December 2023. I was having severe pain in my right kidney area, which led me to the emergency room for...Reactions0reactionsComments2 comments
Regaining Patient Confidence When Battling Cancer...Cancer patient confidence can be a fickle thing. Like the Chairman, Frank Sinatra, sang in “That’s Life,” you might be “riding high in April, shot down in May.” For patients...Reactions0reactionsComments6 comments
What’s One Word You’d Use to Describe Reading Your Pathology Report?...This should be fun....Reactions0reactionsComments23 repliesAwarenessHealthcare Team
Let's Celebrate!...My daughter was a volleyball player. Throughout her teen years, we traveled with her teams to watch them compete. One of the girls who played on both her high school...Reactions0reactionsComments0 comments
Making CML the Headline...I recently had a follow-up telehealth visit with my primary doctor. She asked me about any health concerns I was having and what she could do to help. First, we...Reactions0reactionsComments2 comments
