CML
Hello,
I was diagnosed with CML in March of 2023 and put on Sprycel 100, then 80 and finally 50 which took me to deep remission by January 2024. However, the cost of $20,700 every 30 days was a hardship. I had grants, but that ran out. Couldn't get any funding for a month and a half. Am now out of remission - low numbers still - hallelujah! But I'm now on Tasigna 400 mg daily. It's which is cheaper, but still expensive. However, luckily it's paid for by a grant. Wondering if anyone is on that and how it's working for you. Thank you.
It is criminal that we have to, in essence, fundraise for the medicines that we need to, you know, live. Ha ha. I had to also find an organization that was able to cover the co-pays on some of my medications and, thankfully, I did. I am so glad to hear you are still seeing those all-important low numbers! I'm sure there are some of our members who can chime in about their experiences with Tasigna. In the meantime, keep on keepin' on, DPM Thank you Dan. Never giving up
❤️
