I am Living with a Diagnosis of MyelofibrosisI was diagnosed with myelofibrosis on October 5, 2018, at the Cleveland Clinic. I'm still trying to figure it out as I had never heard of it before. I was...Reactions0reactionsComments4 comments
My Myeloproliferative Neoplasm DiagnosisI was diagnosed with a myeloproliferative disorder 5 years ago. My white blood count runs a little high, but the trouble is my platelets. I recently starting doctoring with a...Reactions0reactionsComments12 comments
A Challenging 2018 with Waldenstrom MacroglobulinemiaMy husband was diagnosed with Waldenstrom Macroglobulinemia early in 2018, at 57 years old. He started chemo and immunotherapy in February. His last chemo treatment was July 3rd, and he...Reactions0reactionsComments9 comments
Mantle Cell Lymphoma Stage 4I was diagnosed with this rare type of NHL in Oct 2013. I chose to do nothing. From everything I read, MCL becomes chemoresistant and remission is short lived. It...Reactions0reactionsComments6 comments
Multiple Myeloma and FaithI had severe pain starting in November of 2017 out of the blue. I went to specialist after specialist and they all kept telling me that it was my age...Reactions0reactionsComments10 comments
The Shock of CLLMy mom passed away from cancer and 6 months later I was diagnosed with CLL. It came as quite a shock since this kind of leukemia typically affects older gentleman...Reactions0reactionsComments6 comments
APL and MeI was 72 when my ride began. In Oct 2014, I had just moved from Florida to Southern California. I was getting settled in and thought my fatigue was due...Reactions0reactionsComments4 comments
Waldenstrom MacroglobulinemiaMy husband was diagnosed early in 2018. He also had rapid onset dementia...it was tough. We were dog mushers and spent weekends on the new river trail in Virginia. It...Reactions0reactionsComments4 comments
It Is What It IsNov 2016, 3 days before Thanksgiving, I was diagnosed with MDS blood cancer. My mom was diagnosed on December 3rd, 2016 with lung cancer. Barely got through the holiday when...Reactions0reactionsComments9 comments
My JourneySo, my journey started in 2015, 2 weeks after my mother passed away from cancer. Needless to say, I was in a cloud the two years I battled my lymphoma...Reactions0reactionsComments6 comments
APL Does Not Define MeMy name is Becky, and I am a Registered Nurse. In July of 2013, I was diagnosed with Acute Promyelocytic Leukemia at the age of 47. After a month of...Reactions0reactionsComments7 comments
Coming to Terms with Living with CancerHi, I’m Nichola. I am 43 and married with 2 daughters aged 9 and 13. I work as an assistant head in a primary school. I was initially diagnosed with...Reactions0reactionsComments18 comments
Multiple Myeloma JourneyAfter 69 years of good health, I was told by my physician that my kidneys were failing in mid-2014 and referred me immediately to a nephrologist for testing. I had...Reactions0reactionsComments5 comments
My HusbandThis summer, my husband had night sweats, lost weight, and had a huge lump (he finally told me) in the groin area. The lump was removed and the Dr. told...Reactions0reactionsComments3 comments
Perhaps We Can Help Each OtherI was diagnosed with B-Cell lymphoma stage 4, on June 1st, 2015. I had IV chemo, over 40 blood transfusions, dozens of Neupogen shots, blood clots, pneumonia, and had allergic...Reactions0reactionsComments11 comments
Marcia's StoryAfter a terrible migraine and nausea, I went to the emergency room. After scans and blood work, I was diagnosed with polycythemia vera. Actually, it was May 23, 2017... I'll...Reactions0reactionsComments6 comments
A Life-Changing MomentHello, I am 53 and was surprised when I was told in the early part of 2014 that I had Multiple Myeloma. WOW, what a life-changing moment. I had a...Reactions0reactionsComments7 comments
The Beginning: A Caregiver's PerspectiveMy husband has multiple myeloma. Started 2 years ago. He had leg pain from his hip to the heal of his left leg. Went to primary care physician and did...Reactions0reactionsComments3 comments
Remission with NHL/CLLWas diagnosed with NHL was clear for 8 years. Felt sick, went ER. They did a CT scan, I had a feeling before the Dr. came back. I told Dr...Reactions0reactionsComments1 comments
NHL: Over A Year In RemissionGood day all! I am 67 yrs old and over a year ago, I was diagnosed with marginal zone, B cell NHL with a tumor in my spleen. My spleen...Reactions0reactionsComments7 comments