Multiple Myeloma Journey
After 69 years of good health, I was told by my physician that my kidneys were failing in mid-2014 and referred me immediately to a nephrologist for testing. I had been in considerable rib and back pain for several months prior and had been told by urgent care that it was osteoporosis.
Starting my journey
Testing revealed multiple myeloma, which I had never heard of. I was referred to an oncologist and entered into a clinical trial with Revlimid, Dexamethasone, and Ninlaro although at the time I did not know the third drug.
It worked so well that within 4 weeks my poor kidneys were overloaded with dead cancer cells and were about to shut down. I was hospitalized for two weeks to get everything fixed. My Kidney function came back pretty well, but after dosage was cut on my medication, my cancer just kept getting stronger.
After a few more months, I dropped out of the program and was put on injections of Velcade. Velcade was wonderful. There were no more horrible side effects like sweats, chills, or appetite loss. I had lost 30 pounds during a clinical trial.
Finding what works for me
I was on Velcade for two years and got to remission for more than a year before it stopped working. Next, I was on Empliciti and Pomalyst for about six months and it did not seem to be effective.
After that, I went to UCLA for evaluation, and in conjunction with my local oncologist, they recommended a program of Daratumumab, Dexamethasone, and Pomalyst with a final goal of a stem cell transplant, if all goes well.
I have been on this program since June 2018, and a recent biopsy reveals that cancer cells are down to 30%! So it looks quite positive right now. I also began receiving Denosumab for bone strengthening just this week.
How long did it take to be properly diagnosed?