A Challenging 2018 with Waldenstrom Macroglobulinemia

By tmiller

1 min read

My husband was diagnosed with Waldenstrom Macroglobulinemia early in 2018, at 57 years old. He started chemo and immunotherapy in February.

His last chemo treatment was July 3rd, and he will continue with the immunotherapy until our next trip to MD Anderson in Houston next month.

What a year!

We have dealt with the shock, treatments, neuropathy, depression, and fear.

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Anthony Carrone Community Admin
Hi <inline-mention user-id="3654432" username="tmiller"/> - What a year, indeed! You are not alone in experiencing those emotions - As I'm sure you've seen from other members stories. How have you and your husband been doing lately? Sending positive vibes for the immunotherapy next month! Please keep us updated on how everything goes 😀
CindyC Moderator
I am glad to hear that your husband is done his chemo and now only has his immunotherapy treatments. You have had quite a year. Hopefully 2019 will be better! MD Anderson is a wonderful Cancer Treatment Center. You are in very good hands,
Yolanda Brunson-Sarrabo Moderator & Contributor
I wish your husband continued improvement; It's a lot to take in for both of you. Positive energy your way! Best
b4uweb Member
My mom has had Waldenstrom Macroglobulinemia for 16 yrs chemo every couple years but has done very well and rarely sick
1. tmiller Member
 Is your mother able to work? Does she have neuropathy due to chemotherapy? If so, did it ever go away or get any better? What about chemo fog, how long was it before this got better?
b4uweb Member
If you have kids have them get a blood test because my mom has Waldenstrom Macroglobulinemia and I have CLL not sure if related but never know
Ann Harper Moderator & Contributor
<inline-mention user-id="3654432" username="tmiller"/> How is everything Going?
Ann Harper Moderator & Contributor
I hope all goes well with your visit. Please keep us informed of your progress.
Birdsam Member
I was diagnosed with Waldenstroms just a month ago. When caught my M protein was at 3,757. At labs at hemotologist the M protein was at 4006. They are repeating labs in 3 months, end of January to determine the progression of it. Have not started any treatments yet. Dr. Said M protein needs to be over 5,000. I'm feeling fine except a little tired at times. I do have some mild heart issues so will be going to my cardiologist in December and will see if this is affecting my heart any. I can feel some difference in it. I never see many with waldenstroms so I'm anxious to connect with people who have it so I might know what to expect. I'm 64 and of course female.