Living Life Till the Blood is Used UpI've been praying and begging doctors and hospitals for help and diagnosis for working on 5 years now. It all started with a ripped loose collarbone at the sternum and...reactions8comments
Strokes & My Cancer: Essential ThrombocythemiaIn March of 2014, I had a stroke. Come to find out after an MRI I had had multiple strokes. Four months later on my stroke journey of doctor after...reactions14comments
Polycythemia Vera (PV)I just found out last month I have PV Now I'm waiting for results from my bone marrow. Not sure how I feel...Confused, angry, scared? I have been oral chemotherapy...reactions12comments
CLL/SLLLast May 2018, I was diagnosed with CLL/SLL. It's been a hard road trying to understand what I really have. Throughout this time, I was in the watchful waiting stage...reactions4comments
Living with CLLI feel tired most days. No motivation. When I eat or drink sometimes do not feel well. Thus a nap is usually in order. I've been healthy all my 75...reactions1comment
Living with my Star Trek Illness: Understanding Myelodysplastic SyndromesJune 2, 2017, I learned that I have myelodysplastic syndromes (MDS). Doesn't that sound like something written for a Star Trek episode? Maybe something Mr. Spock would acquire? Myelo is...reactions19comments
I Wore RedI wore red that day. I wore red and looked good! Damn good! Okay…that may be a stretch…I wore an old red t-shirt, slightly loose around the neck so the...reactions7comments
AML: The Year in This Crazy LifeMy name is Becky, and I was this healthy invincible woman who just by chance went to my primary physician one year ago. Feeling good, I just happened to mention...reactions3comments
Bone Marrow Transplant Result AnxietyI am 20 months post bone marrow transplant for AML. My last visit at the end of January showed all positive results. I return to the doctor at the beginning...reactions4comments
Amyloidosis and Multiple MyelomaI hadn’t felt good for months. Kept telling the doctor that something was not right, then my legs started to swell. She sent me to a kidney doctor who sent...reactions6comments
Hey, So We Got Multiple MyelomaI thought I would throw in my one piece of advice for MM patients. When I was diagnosed, I moped and cried for a week. Then I said, "To hell...reactions5comments
Essential Thrombocythemia and Lymphoma-Large B CellI was diagnosed with Essential Thrombocytemia in July of 2017 and started on treatment shortly after that. My biggest complaint was fatigue but I continued to work my parttime job...reactions8comments
My Crazy Roller Coaster Ride with Multiple MyelomaPrior to 2012, I was living the life I loved. I was the mother of two beautiful children; my son Matthew was 22. He was building a life of his...reactions9comments
Even With Low Energy, It's Worth Getting upIt's been over 5 years since my diagnosis and my cancer is still going, but slowing down. I have an enlarged spleen and liver. I get up and get dressed...reactions6comments
Learning I have Chronic Lymphocytic Leukemia (CLL)In September, I went in for my annual mammogram. All was good with it but the lymph nodes in my armpit were enlarged. Blood work showed my WBC was really...reactions3comments
Went in for Sciatic Nerve Pain, Came Out with Multiple MyelomaWow, where to start? Well, I can say I moped and cried for a week. After that f**k it. Must be my Brooklyn upbringing. I believe getting diagnosed with multiple...reactions15comments
Road Warrior DownEvery cancer patient remembers the first time they heard the “C” word applied to themselves. Everything stops. Priorities change in an instant. You start rethinking what is really worth fighting...reactions8comments
FrustratedHi, I am Debbie, 61yrs old. Diagnosed with follicular lymphoma about 1 1/2 years ago. After 1 round of giziva, I had to stop because of my low WBC count...reactions5comments
Not the "Vacation" We WantedAugust 15, 2018 my family and I were packing the truck, waiting for my husband to come home from work so we could start our vacation. We were headed to...reactions7comments
Multiple Myeloma Diagnosis for Thanksgiving“I just don’t feel right.” That’s how I remember it starting. And then the simple things like climbing one flight of stairs in my house winded me. “Hmmm. Strange.” And...reactions5comments