Stories

I just found out last month I have PV Now I'm waiting for results from my bone marrow. Not sure how I feel...Confused, angry, scared? I have been oral chemotherapy...

Last May 2018, I was diagnosed with CLL/SLL. It's been a hard road trying to understand what I really have. Throughout this time, I was in the watchful waiting stage...

I feel tired most days. No motivation. When I eat or drink sometimes do not feel well. Thus a nap is usually in order. I've been healthy all my 75...

June 2, 2017, I learned that I have myelodysplastic syndromes (MDS). Doesn't that sound like something written for a Star Trek episode? Maybe something Mr. Spock would acquire? Myelo is...

I wore red that day. I wore red and looked good! Damn good! Okay…that may be a stretch…I wore an old red t-shirt, slightly loose around the neck so the...

My name is Becky, and I was this healthy invincible woman who just by chance went to my primary physician one year ago. Feeling good, I just happened to mention...

I am 20 months post bone marrow transplant for AML. My last visit at the end of January showed all positive results. I return to the doctor at the beginning...

I hadn’t felt good for months. Kept telling the doctor that something was not right, then my legs started to swell. She sent me to a kidney doctor who sent...

I thought I would throw in my one piece of advice for MM patients. When I was diagnosed, I moped and cried for a week. Then I said, "To hell...

I was diagnosed with Essential Thrombocytemia in July of 2017 and started on treatment shortly after that. My biggest complaint was fatigue but I continued to work my parttime job...

Prior to 2012, I was living the life I loved. I was the mother of two beautiful children; my son Matthew was 22. He was building a life of his...

It's been over 5 years since my diagnosis and my cancer is still going, but slowing down. I have an enlarged spleen and liver. I get up and get dressed...

In September, I went in for my annual mammogram. All was good with it but the lymph nodes in my armpit were enlarged. Blood work showed my WBC was really...

Wow, where to start? Well, I can say I moped and cried for a week. After that f**k it. Must be my Brooklyn upbringing. I believe getting diagnosed with multiple...

Every cancer patient remembers the first time they heard the “C” word applied to themselves. Everything stops. Priorities change in an instant. You start rethinking what is really worth fighting...

Hi, I am Debbie, 61yrs old. Diagnosed with follicular lymphoma about 1 1/2 years ago. After 1 round of giziva, I had to stop because of my low WBC count...

August 15, 2018 my family and I were packing the truck, waiting for my husband to come home from work so we could start our vacation. We were headed to...

“I just don’t feel right.” That’s how I remember it starting. And then the simple things like climbing one flight of stairs in my house winded me. “Hmmm. Strange.” And...

It's time to share. I have been in the background this past year as I struggled to climb this uphill trail. It's been two months since I finished my treatment...

March 6, 2018 began like any other day. My husband, a contractor and sole provider for our family, left for work and I knew he was scheduled to be on...