Amyloidosis and Multiple MyelomaI hadn’t felt good for months. Kept telling the doctor that something was not right, then my legs started to swell. She sent me to a kidney doctor who sent...Reactions0reactionsComments6 comments
Hey, So We Got Multiple MyelomaI thought I would throw in my one piece of advice for MM patients. When I was diagnosed, I moped and cried for a week. Then I said, "To hell...Reactions0reactionsComments5 comments
Essential Thrombocythemia and Lymphoma-Large B CellI was diagnosed with Essential Thrombocytemia in July of 2017 and started on treatment shortly after that. My biggest complaint was fatigue but I continued to work my parttime job...Reactions0reactionsComments8 comments
My Crazy Roller Coaster Ride with Multiple MyelomaPrior to 2012, I was living the life I loved. I was the mother of two beautiful children; my son Matthew was 22. He was building a life of his...Reactions0reactionsComments7 comments
Even With Low Energy, It's Worth Getting upIt's been over 5 years since my diagnosis and my cancer is still going, but slowing down. I have an enlarged spleen and liver. I get up and get dressed...Reactions0reactionsComments6 comments
Learning I have Chronic Lymphocytic Leukemia (CLL)In September, I went in for my annual mammogram. All was good with it but the lymph nodes in my armpit were enlarged. Blood work showed my WBC was really...Reactions0reactionsComments3 comments
Went in for Sciatic Nerve Pain, Came Out with Multiple MyelomaWow, where to start? Well, I can say I moped and cried for a week. After that f**k it. Must be my Brooklyn upbringing. I believe getting diagnosed with multiple...Reactions0reactionsComments15 comments
Road Warrior DownEvery cancer patient remembers the first time they heard the “C” word applied to themselves. Everything stops. Priorities change in an instant. You start rethinking what is really worth fighting...Reactions0reactionsComments8 comments
FrustratedHi, I am Debbie, 61yrs old. Diagnosed with follicular lymphoma about 1 1/2 years ago. After 1 round of giziva, I had to stop because of my low WBC count...Reactions0reactionsComments5 comments
Not the "Vacation" We WantedAugust 15, 2018 my family and I were packing the truck, waiting for my husband to come home from work so we could start our vacation. We were headed to...Reactions0reactionsComments7 comments
Multiple Myeloma Diagnosis for Thanksgiving“I just don’t feel right.” That’s how I remember it starting. And then the simple things like climbing one flight of stairs in my house winded me. “Hmmm. Strange.” And...Reactions0reactionsComments5 comments
My Journey with CLL and CADIt's time to share. I have been in the background this past year as I struggled to climb this uphill trail. It's been two months since I finished my treatment...Reactions0reactionsComments3 comments
Stage IV Lymphocytic LymphomaMarch 6, 2018 began like any other day. My husband, a contractor and sole provider for our family, left for work and I knew he was scheduled to be on...Reactions0reactionsComments5 comments
I am Living with a Diagnosis of MyelofibrosisI was diagnosed with myelofibrosis on October 5, 2018, at the Cleveland Clinic. I'm still trying to figure it out as I had never heard of it before. I was...Reactions0reactionsComments4 comments
My Myeloproliferative Neoplasm DiagnosisI was diagnosed with a myeloproliferative disorder 5 years ago. My white blood count runs a little high, but the trouble is my platelets. I recently starting doctoring with a...Reactions0reactionsComments12 comments
A Challenging 2018 with Waldenstrom MacroglobulinemiaMy husband was diagnosed with Waldenstrom Macroglobulinemia early in 2018, at 57 years old. He started chemo and immunotherapy in February. His last chemo treatment was July 3rd, and he...Reactions0reactionsComments9 comments
Mantle Cell Lymphoma Stage 4I was diagnosed with this rare type of NHL in Oct 2013. I chose to do nothing. From everything I read, MCL becomes chemoresistant and remission is short lived. It...Reactions0reactionsComments6 comments
Multiple Myeloma and FaithI had severe pain starting in November of 2017 out of the blue. I went to specialist after specialist and they all kept telling me that it was my age...Reactions0reactionsComments10 comments
The Shock of CLLMy mom passed away from cancer and 6 months later I was diagnosed with CLL. It came as quite a shock since this kind of leukemia typically affects older gentleman...Reactions0reactionsComments6 comments
APL and MeI was 72 when my ride began. In Oct 2014, I had just moved from Florida to Southern California. I was getting settled in and thought my fatigue was due...Reactions0reactionsComments4 comments