Diagnosed with Chronic Myeloproliferative

By therese59

1 min read

Last updated: March 2021

I was diagnosed about two years ago with Chronic Myeloproliferative. I take 25mg of Jakafi twice a day. I have an older sister who has the same. She's had blood cancer for several years. I went through a few doctors who just dismissed my symptoms as in my mind. Finally, my sister had me go to a doctor who discovered her cancer and after looking through tests, including a bone marrow biopsy, he knew right away what was happening.

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Susan Gonsalves Moderator
<inline-mention username="therese59" user-id="3654528"/> I shared that experience of having doctors dismiss my symptoms and think I was a menopausal hypochondriac. The important thing is that you found someone who will help you through this journey now. How are you feeling? I have a chronic leukemia and take an oral TKI daily. I'm going to read up on your condition to find out a little more. Thanks for sharing. Susan (Blood-Cancer.com Team Member)
1. Dennis Golden Moderator
 Once upon a time doctors had a great career path You wanted to help people. You got your degrees. You did your residency and you were free to pursue your career. You met with patients you listened and took the time to diagnosed the person in front of you Today MD's are hard pressed. If you have not notices medical practices and hospital are merging at alarming rates in an effort to handle the press of ever rising federal and state regulations, patient paperwork , insurance company demands for staged treatment protocols, following the latest recommendations from the United States Preventative Services Taskforce. On top of that you have keep up with the the latest diagnostic and staged treatment approaches. You most likely are seeing an increased number of aging patients. You are communicating by ZOOM and also dealing with this thing called COVID. Is it any wonder why MD's are overwhelmed. Today patients are being processed vs examined and listened to. More than ever before patients must be proactive and speak up and not be brushed off by a "medical processor" who is trying to keep on a timeline. It is much easier to dismiss a patient and move on vs taking the time to look a bit deeper. When all is said and done it is you the patient who is responsible for your personal health in partnership with your MD. If it is not a partnership perhaps it is time to consider moving on ..... Dennis (Blood-Cancer.com Team)

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