Eating is Hard...Earlier this week, I started freaking out because I thought I was relapsing. I thought, “No, not now, not again please.” I had been feeling horribly fatigued, to the point...reactions1comment
Which aspect of your blood cancer treatment journey has presented the biggest challenge?...1. Managing treatment side effects and their impact on daily life? 2. Navigating the complexities of treatment options and decisions? 3. Coping with the emotional and psychological toll of treatment?...reactions13repliesTips & AdviceCopingTreatment
Healing Through Music: A Leukemia Patient's Tale...Dating back to pre-school age, my mom used to tell me she would put a stack of records (dating myself!) on the stereo, sit me down in a rocking chair...reactions2comments
Constant Reminders That I Have Cancer...Christmas morning. I was enjoying a relaxing, festive time with my family. My phone buzzed. It was an automated reminder from the cancer hospital. I had an oncologist appointment in...reactionscomments
What is ONE Thing Gets You Through The Challenges Every Day?...Blood-Cancer comes with a lot of challenges. I have found that focusing on one thing helps me cope on a daily basis. For me that one thing is being in...reactionsrepliesCoping
Juggling Appointments As a Caregiver...Life is busy. Work of course takes up a lot of time, but so do the responsibilities at home like cooking, cleaning, shopping, etc. But what about when a health...reactions1comment
FeaturedChemo Prep Tips ...What are your burning questions or best practices to share about prepping for chemotherapy?...reactions25repliesCopingSide EffectsTreatment
Blood Cancer … Defusing the Impact...It is not easy to deal with a blood cancer diagnosis or the many treatments that follow. And yes, it is so easy in the middle of treatment to quietly...reactions7comments
Block or Cope...A diagnosis is some serious business and a lot to get through in processing. How do or have you processed it all and everything that is entailed? Have you blocked...reactionsrepliesCopingDiagnosisNewly Diagnosed
Remembering The Darkest Season...Looking back some 3 years ago, when my blood cancer diagnosis was brand new, I recalled the many months of chemo infusions while also remembering the many challenges. I often asked...reactionscomments
The Power of One Good Thing...I recently enjoyed hearing about the 2023 National Teacher of the Year. Her name is Rebecca Petterson, and she lives in my hometown of Tulsa, Oklahoma. We retired teachers are...reactionscomments
Nk T Cell Non Hodgkins Lymphoma unlikely patient...Hi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old...reactions2repliesCopingDiagnosisDepression
Birth Control Concerns...This past week, I went to my doctor for an appointment that I thought, for once, wouldn’t have much to do about my past cancer diagnosis. But I underestimated how...reactionscomments
Active 8 days agoHas Anyone Minimized Your Diagnosis? ...Have you ever felt like someone has minimized your cancer experience? How so? How did you respond?...reactions76repliesTips & AdviceIntimacy & RelationshipsFriends & Family
“Surviving” Cancer - What It Means To You...There has been a lot of talk lately about what surviving cancer actually means, and I think it’s a valid question that doesn’t get talked about much. There is life...reactions2comments
Financial assistance ...I'm back for more advice.. I'm in day 72 after my auto stem cell procedure. In my work field (working with individuals with idd) I'm not sure when I can...reactions3repliesAwarenessCostCoping
Living With Blood Cancer and Additional Cancer...When you are diagnosed with blood cancer, most doctors will do their best to try to prepare you for the future. You will be referred to other doctors, support groups...reactions7comments
Walking for Exercise With Cancer...I never thought I would count myself as one of “the walkers,” the legion of exercisers who blaze sidewalks and trails to sharpen their fitness. But, following an autologous stem...reactions10comments
From MDS to Leukemia. What Should I Expect?...Found out last week my MDS is now leukemia and I will need a bone marrow transplant. Can any one tell me what to expect? I'm scared to death and...reactions17comments
Hodgkins Lymphoma...What?...In 2021, I suddenly was faced with extreme vertigo and balance issues. My doctor diagnosed it as a sinus infection. I went to the local walk-in where I was treated...reactions2comments