Job Hunting Presents Challenges for Blood Cancer Patient...I’m back in the job hunt rat race. First impressions? It’s not pretty. Looking for a job and holding down a position has unique challenges when you are battling blood...Reactions0reactionsComments1 comments
Medical Gaslighting...Have you ever been gaslit by your doctor or healthcare team? How did it make you feel and what did you do about it?...Reactions0reactionsComments0 repliesTips & Advice
Having To Be Strong, Again...I don’t want to say too much. It’s all bit raw. Processing. It looks like big change is about to happen. Not with my health. At least, I don’t think...Reactions0reactionsComments1 comments
Some Help With Sleep...Sleep issues are a common side effect of cancer. My daughter Crystal, who had Hodgkin lymphoma, had a lot of trouble sleeping. The disease, as well as the treatment, can...Reactions0reactionsComments0 comments
How do you respond to unwanted advice? ...As a person living with cancer, you may receive unsolicited and even unwanted advice from friends, family, and strangers. It might sound like no big deal to some, but it...Reactions0reactionsComments4 repliesFriends & FamilyTips & Advice
No One Tells You This About Blood Cancer ...We have heard the joke about the 2 big certainties in life being taxes, and death. And while we can certainly avoid paying taxes for a while, eventually, the tax...Reactions0reactionsComments0 comments
Daily multiple vitamins ...I asked my Oncologist yesterday about adding a daily multiple vitamin to my daily pill regimen. (I had taken them before my cancer showed up, I was just out). He...Reactions0reactionsComments3 repliesMultiple Myeloma
Anyone looking for support groups around blood cancer?...hi all i have found it VERY hard to find virtual support groups for people with blood cancer. does anyone know of any online groups happening?...Reactions0reactionsComments8 repliesAwarenessLeukemiaParents and Caregivers
Bottoms Up: A Peri Care Story...I was diagnosed with chronic myelogenous leukemia in 2011. Having an autoimmune disease means trying to avoid infections wherever we can. My fellow blood cancer patients can relate. When I...Reactions0reactionsComments0 comments
stop dehyrdation...Hi I suffer dehydration, I hope someone will make a mouth plate attached to a tube that sprays water in my mouth when I am awake and sleeping, I am...Reactions0reactionsComments2 repliesDiet & Nutrition
Will you take our In America survey and help others understand the impact of blood cancer?...The In America survey is now closed. We are conducting our In America survey to learn more about the challenges of living with blood cancer. By taking our survey, you...Reactions0reactionsComments0 replies
Me and the Vikings...Shortly after being diagnosed with multiple myeloma on May 2, 2011, I started my blog, "MattvsMyeloma", as a way of letting family and friends know how I was doing, given...Reactions0reactionsComments0 comments
Bispecific T-Cell Engager (BiTE) Therapy...Bispecific T-cell engagers (BiTEs) are drugs used to treat cancer. Several BiTE therapies are approved to treat certain forms of blood cancer. BiTE therapies form a link between certain immune...
Cancer and the Ways It Changes Your Life...Cancer is a lifelong illness. I know many of us have heard that phrase, or even said it ourselves, but what does it really mean? Does it mean A. cancer...Reactions0reactionsComments2 comments
Relapse...Have you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...Reactions0reactionsComments7 repliesCopingTreatmentDiagnosis
What Does Chemo Feel Like?...Over five years, I had cancer three different times. The first and second times, it showed up as non-Hodgkin's lymphoma, and the third time as large B-cell lymphoma. I had...Reactions0reactionsComments2 comments
Facing Fear...I saw several suspenseful disaster movies back-to-back when I was young. Some of these included The Poseidon Adventure, The Towering Inferno and Earthquake. These movies gave me nightmares for months...Reactions0reactionsComments0 comments
How did you deal with hair loss? ...Losing your hair during treatment can be a difficult process. Some people decide to take control and cut it themselves before it starts to go. Others try new wigs or...Reactions0reactionsComments20 repliesSide Effects
Shades of Mean and What To Do (or Not Do) About Them...If you could choose how people would insult or put you down, would you want it to be in your face or indirect? More like a shout or more like...Reactions0reactionsComments8 comments
Treatment Wonder...How often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions0reactionsComments3 repliesCopingResearch & Clinical TrialsTreatment
