Treatment Wonder...How often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions0reactionsComments3 repliesCopingResearch & Clinical TrialsTreatment
A Different Headspace...I think I’ve now had 2 blood cancer appointments where my consultant hasn’t talked about my going back on treatment or double checking I’ve got some ‘just in case’ which...Reactions0reactionsComments1 comments
I have Essential Thrombocythemia....I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of people with ET get PH. Has anyone else...Reactions0reactionsComments2 repliesDiagnosis
Chemo med change...My platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I just changed to a new pharmacy this year...Reactions0reactionsComments2 repliesTreatmentAwareness
Considerations When Sharing Your Cancer Diagnosis...When or if to share your blood cancer diagnosis is an extremely personal decision, and there is no wrong answer for patients. Some share, some don’t. While we might feel...Reactions0reactionsComments6 comments
Your Fitness Go-To......Hope the year is starting well for you. Many people hop on the exercise bandwagon in the first part of the year. What is your favorite exercise? For me, I...Reactions0reactionsComments6 repliesCopingExerciseTips & Advice
Tips to Managing Health Insurance With Blood Cancer...I used to think that all insurance plans were the same. One size fits all. Just hand them your card, and you will magically have all you need covered! Once...Reactions0reactionsComments1 comments
Trials of Remission...The term remission is a term that brings comfort and relief for many, and there are those who also feel “What’s the catch”? Multiple myeloma has a way of resurfacing...Reactions0reactionsComments2 comments
Word of the Year and the Impact on My Cancer Journey...Every end of year, I come up with a word for the new year. For me, it seems to be a better alternative than trying to make resolutions. I try...Reactions0reactionsComments8 comments
Ray Hartjen...Ray Hartjen is a writer and musician living in northern California. His second book, Me, Myself & My Multiple Myeloma, will be published by Morgan James Publishing early in 2024...
Remove the Mask: Talking About Your Blood Cancer...It's okay not to always be strong. It's fine to let others and, more importantly, yourself, know that living with blood cancer takes a toll on the patient--mind, body, and...Reactions0reactionsComments1 comments
While You’re At It Doc...When I was first diagnosed with blood cancer my oncologist arranged for an infusion nurse to stop in to see me a day before any chemo treatments took place. It...Reactions0reactionsComments11 comments
Now Enrolling-Smartphone Wellness Study for Blood Cancer Patients!...Mays Cancer Center is seeking US-based adult blood cancer patients with poor sleep to participate in a 20-week study to test a digital wellness intervention. Participation involves completing online surveys...Reactions0reactionsComments0 repliesResearch & Clinical TrialsLeukemiaMultiple Myeloma
CLL Changed My Life...My name is Lynn. I’m 71 and was diagnosed with Chronic Lymphocytic Leukemia (CLL) in May of 2021. I found my life changing slowly over the past few years; not...Reactions0reactionsComments14 comments
Multiple Myeloma and Side Effects: Where Do I Go From Here?...Started Multiple Myeloma treatment late 2018, and in remission since early 2019. You would think I should be relieved and able to resume life as before the diagnosis, but it's...Reactions0reactionsComments6 comments
MDS Diagnosis Journey...After a couple of years with dropping platelet counts and unexplainable fatigue, I was diagnosed in September 2023 with MDS. I don't know what to expect. I've been pretty even...Reactions0reactionsComments5 comments
Hope Through Treatment for CML...I was diagnosed with CML in 2014. I was devastated, as I had already been fighting MS. By the grace of whatever higher power you believe in, I stumbled into...Reactions0reactionsComments1 comments
Being Proactive About Your Health...Sickness happens. We come in contact with another sick person and catch whatever they have. We usually know kind of quickly that we are coming down with something because of...Reactions0reactionsComments3 comments
New Year New Consultation...Happy New Year! Are you ready to do things differently regarding the patient and doctor experience this year? If you could what changes in communication would you like to correct...Reactions0reactionsComments2 repliesCopingHealthcare TeamTips & Advice
