Essential Thrombocythemia, MPN...I was told that since I had a high platelet count, I would be perfect to be a platelet donor. I donated platelets every 3 weeks for several years. At...reactions4comments
Don't Just Sit There...In “The Beauty of Dusk,” New York Times columnist Frank Bruni writes about losing his vision but gaining insights after a stroke left him blind in one eye and unsure...reactionscomments
Anyone looking for support groups around blood cancer? join here...Hi All I have created a support group after struggling to find some online- it is on reddit and it open to anyone going through blood cancer (or any other...reactions2repliesMental HealthLymphomaLeukemia
Unpacking That Suitcase...It is fair to say that every blood cancer patient and their experiences are not the same. The process and steps can be a unique experience, whether good, bad, or...reactionscomments
Job Hunting Presents Challenges for Blood Cancer Patient...I’m back in the job hunt rat race. First impressions? It’s not pretty. Looking for a job and holding down a position has unique challenges when you are battling blood...reactions1comment
Medical Gaslighting...Have you ever been gaslit by your doctor or healthcare team? How did it make you feel and what did you do about it?...reactionsrepliesTips & Advice
Having To Be Strong, Again...I don’t want to say too much. It’s all bit raw. Processing. It looks like big change is about to happen. Not with my health. At least, I don’t think...reactions1comment
Some Help With Sleep...Sleep issues are a common side effect of cancer. My daughter Crystal, who had Hodgkin lymphoma, had a lot of trouble sleeping. The disease, as well as the treatment, can...reactionscomments
How do you respond to unwanted advice? ...As a person living with cancer, you may receive unsolicited and even unwanted advice from friends, family, and strangers. It might sound like no big deal to some, but it...reactions4repliesFriends & FamilyTips & Advice
No One Tells You This About Blood Cancer ...We have heard the joke about the 2 big certainties in life being taxes, and death. And while we can certainly avoid paying taxes for a while, eventually, the tax...reactionscomments
Daily multiple vitamins ...I asked my Oncologist yesterday about adding a daily multiple vitamin to my daily pill regimen. (I had taken them before my cancer showed up, I was just out). He...reactions3repliesMultiple Myeloma
Anyone looking for support groups around blood cancer?...hi all i have found it VERY hard to find virtual support groups for people with blood cancer. does anyone know of any online groups happening?...reactions8repliesAwarenessLeukemiaParents and Caregivers
Bottoms Up: A Peri Care Story...I was diagnosed with chronic myelogenous leukemia in 2011. Having an autoimmune disease means trying to avoid infections wherever we can. My fellow blood cancer patients can relate. When I...reactionscomments
stop dehyrdation...Hi I suffer dehydration, I hope someone will make a mouth plate attached to a tube that sprays water in my mouth when I am awake and sleeping, I am...reactions2repliesDiet & Nutrition
Will you take our In America survey and help others understand the impact of blood cancer?...The In America survey is now closed. We are conducting our In America survey to learn more about the challenges of living with blood cancer. By taking our survey, you...reactionsreplies
Me and the Vikings...Shortly after being diagnosed with multiple myeloma on May 2, 2011, I started my blog, "MattvsMyeloma", as a way of letting family and friends know how I was doing, given...reactionscomments
Bispecific T-Cell Engager (BiTE) Therapy...Bispecific T-cell engagers (BiTEs) are drugs used to treat cancer. Several BiTE therapies are approved to treat certain forms of blood cancer. BiTE therapies form a link between certain immune...
Cancer and the Ways It Changes Your Life...Cancer is a lifelong illness. I know many of us have heard that phrase, or even said it ourselves, but what does it really mean? Does it mean A. cancer...reactions2comments
Relapse...Have you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...reactions7repliesCopingTreatmentDiagnosis
What Does Chemo Feel Like?...Over five years, I had cancer three different times. The first and second times, it showed up as non-Hodgkin's lymphoma, and the third time as large B-cell lymphoma. I had...reactions2comments
