Chronic Questioning With Chronic Myeloid LeukemiaIt is easy for others to forget the chronic nature of chronic myeloid leukemia (CML), but I do not have the luxury of forgetting. In October, I will mark the...Reactions0reactionsComments2 comments
Dear Blood Cancer, I Have a Bone To Pick With You!You came uninvited, at the worst of times, Bringing with you mountains too steep to climb. I hate you for the fear, the hurt, the tears, For how you touch...Reactions0reactionsComments0 comments
Chemo, Radiation, and HURRICANES?!? Oh My!!Recently I've had the pleasure of going through yet another hurricane in my lifetime. I was raised mainly in Florida, so hurricanes are a normal occurrence. But since moving to...Reactions0reactionsComments5 comments
Embracing Blood CancerThere comes a time when we realize that some things in life are not working. For me, that deep awakening occurred following a series of traumatic episodes. Strangely enough, a...Reactions0reactionsComments2 comments
Overcoming ObstaclesIt took me 6 months of training to prepare my mind, as well as my mind and body for a race. I’m so glad I signed up, and I must...Reactions0reactionsComments0 comments
Breaking Down Blood Cancer Awareness in SeptemberSeptember is Blood Cancer Awareness Month. If you are on this site, you likely either have blood cancer or know someone who does. On thing is for sure: we all...Reactions0reactionsComments1 comments
Living with Blood Cancer: Overcoming JudgementHave you ever felt judged for having cancer? There’s a red flag I’ve noticed that tells me when a conversation might not go over well. It starts with a simple...Reactions0reactionsComments0 comments
Understanding Non-Compliance: My Journey with Blood CancerDealing with blood cancer is challenging enough without facing misunderstandings and misjudgments. Here’s my story of being perceived as non-compliant to treatment, and what I did about it. When I...Reactions0reactionsComments2 comments
Embracing a New Normal by Overcoming Feelings of FailureAs cancer patients, we often have to come to grips with “the new normal.” For us, it starts soon after diagnosis. Eventually, and probably, the sooner the better, we have...Reactions0reactionsComments0 comments
My Message of HopeThis year, I had a slightly different attitude towards blood cancer awareness month, specifically CML Awareness Day (September 22), and decided to do an Instagram live about it. On my...Reactions0reactionsComments0 comments
CAR T and the Fatigue FalloutWhen I was going into the trial for CAR T-cell therapy, I knew it required a seven-day hospital stay. I told the admitting nurse that I would be out of...Reactions0reactionsComments0 comments
What Do You Have To Prove?As the youngest sibling, I spent a lifetime trying to keep up with the accomplishments, expectations, and approval of my older sisters. As a mom, I have found myself wanting...Reactions0reactionsComments0 comments
The Importance of SleepWe sleep for one-third of our lives. That’s how important sleep is. However, Dr. Marishka Brown, a sleep expert at the National Institutes of Health, points out that sleep is...Reactions0reactionsComments3 comments
To Share a Diagnosis or NotA blood cancer diagnosis is a very private thing. It is truly life-changing. You are in the battle for your life. You don’t know how others will react if you...Reactions0reactionsComments4 comments
The Importance of Health Literacy for People With Blood CancerHealth literacy is a powerful tool that can improve the quality of life for people with blood cancer. Blood cancer is a type of cancer that affects the cells in...Reactions0reactionsComments0 comments
From Drugstore Gloom To a Happier PlaceIt was a dark and stormy night... ...inside my head at the CVS pharmacy in Granby, Mass. I needed my prescription strength fluoride toothpaste. The pharmacist wouldn’t give it to...Reactions0reactionsComments2 comments
Blood Cancer Awareness Month Giveaway 2024 - CLOSEDThis giveaway has closed. Winners are being chosen and notified the week of October 7th, 2024! Thank you for participating, and good luck! In honor of Blood Cancer Awareness Month...Reactions0reactionsComments2 comments
Blood Cancer Awareness Month 2024: Support CircleAs we kick off Blood Cancer Awareness Month, we’re focusing on the theme of "Support Circle." Navigating blood cancer can be overwhelming, but having a solid support system can make...Reactions0reactionsComments1 comments
Living with Myelodysplastic Syndromes for Seven YearsSeven years ago, I learned that I have myelodysplastic syndrome (MDS). I didn't know what this strange-sounding disease was! I had to learn how to pronounce, spell, and explain it...Reactions0reactionsComments0 comments
The Financial Cost of Cancer and How To Deal With ItThe cost of blood cancer. We have gone through endless posts here talking about the emotional, physical, and social cost of cancer and all of its effects. It can wreck...Reactions0reactionsComments5 comments