wblair
"Hoping someone can explain when GVHD will end "
@wblair Unfortunately, there's just no way to answer that without you talking to your physician. I know it's not the answer you wanted to hear but I have known people with GVHD that have had it bad, mild, go away, never go away, etc. There's just no way to tell what will happen in your case, as frustrating as that is, I know. What I can say is that you aren't alone, we will be here to help in whatever way we can. We have many members who live with it and can offer opinions. Keep on keepin' on, DPM
Yes. Also sides of chest tight and can’t raise arms above head. Been doing therapy but not helping
I am sorry you are dealing with this, @wblair. How long have you been in therapy? Shayla (Blood-Cancer.com, Team Member)
About 6 months. Still no big change.
"I still have Chronic GVHD. When will this end?"
@wblair So sorry for the frustration. I know this can be unbearable in wanting the merry go round to stop. I'm throwing positive energy your way to get through the storm. Best!
"I have have chronic GVHD. Both sides of chest are tight and red. Still taking many pills. Hopefully this can be beaten "
Praying for you to get relief from your discomfort. Hang in there 💚
"Still having Chronic GBDH, will I ever get over this? "
@wblair I think you are talking about GVHD? If not then please disregard, but if so, then it is something that you probably have to deal with for a while. It does have some bad side effects but it also comes and goes, so there are not so bad days as well. It gets better though, so hang in there. DPM
Hey @wblair - I want to connect you with our advocate @ronnigordon. She may be a good person to talk to about GVHD. I will also reach out to some of our other community members that have experienced this as well. In the meantime, it's always best to let your doc know if you feel things are worsening. How have you been feeling lately? Best, Anthony
I'm curious about what kind of GVHD @wblair is having. Definitely it needs to be discussed with a doctor so it can be managed.
I have Chronic GVHD and biggest issue is can’t keep back straight. I am walking bent over it and skin on back is very hard.