Block or CopeA diagnosis is some serious business and a lot to get through in processing. How do or have you processed it all and everything that is entailed? Have you blocked...Reactions 0 reactions Comments0 repliesCopingDiagnosisNewly Diagnosed
Nk T Cell Non Hodgkins Lymphoma unlikely patientHi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old...Reactions 0 reactions Comments2 repliesCopingDiagnosisDepression
FeaturedConnect, Support, and Share Experiences with fellow MDS WarriorsLiving with Myelodysplastic Syndromes can be challenging, but you're not alone on this journey. We're here to listen and support each other through the ups and downs of living with...Reactions 0 reactions Comments35 repliesTips & AdviceCopingMDS
Financial assistance I'm back for more advice.. I'm in day 72 after my auto stem cell procedure. In my work field (working with individuals with idd) I'm not sure when I can...Reactions 0 reactions Comments3 repliesCostCopingAwareness
Fulfilling A Bucket ListWhat is that number one on your bucket list of things to do and see? I've been around but Brazil was a must see on my list to visit before...Reactions 0 reactions Comments11 repliesCopingTravel
RelapseHave you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...Reactions 0 reactions Comments7 repliesCopingTreatmentDiagnosis
Treatment WonderHow often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions 0 reactions Comments3 repliesCopingResearch & Clinical TrialsTreatment
Your Fitness Go-To...Hope the year is starting well for you. Many people hop on the exercise bandwagon in the first part of the year. What is your favorite exercise? For me, I...Reactions 0 reactions Comments6 repliesCopingExerciseTips & Advice
New Year New ConsultationHappy New Year! Are you ready to do things differently regarding the patient and doctor experience this year? If you could what changes in communication would you like to correct...Reactions 0 reactions Comments2 repliesCopingHealthcare TeamTips & Advice
AML with flt-3If this is your mutation, tell me how you’re doing. How long since diagnosis, what treatments you’ve had, how you’re coping and what symptoms you do you deal with now?...Reactions 0 reactions Comments0 repliesDiagnosisCoping