"No, It's not Graft Vs Host"...Five years ago I was fortunate to receive a stem cell transplant from an unrelated donor. I had Myelofibrosis, an incurable form of blood cancer that often morphs into AML...reactions8comments
Getting Our Own Day: September 22, CML Awareness Day...Since I first heard about it, I always thought it was very clever of someone to designate a day for chronic myeloid leukemia (or chronic myelogenous leukemia) on September 22...reactions9comments
Deciphering Terms...It’s always great to hear about the new drugs that have made their way into the myeloma treatment spectrum. I know all too well that wasn’t the case over ten...reactions16comments
Kick in the Gut...I was diagnosed with Multiple Myeloma in March of 2016. It all started with severe back pain, that started in January. I waited to see an orthopedic doctor. When the...reactions3comments
Sharing My Diagnosis and Updates...We are all going to address the updates and process differently, that’s for sure. For me, it was the easiest to create content that updated everyone at once so I...reactions4comments
Chemical Induced Menopause ...For the women, did anyone experience chemical-induced early menopause from chemotherapy or a bone marrow transplant? How are you handling this side effect? I know this side effect is heavily...reactions6repliesSide Effects
Sugar Replacement ...I love cake, cookies, chocolate, etc. I am working to find other foods to replace these foods. Any food suggestions to help me to replace my favorite foods. Also, fatigue...reactions7repliesDiet & Nutrition
Funding Update...So the fun and games continue. And as it so often seems with me, nothing is straightforward and simple, which is annoying as I would much rather it was that...reactionscomments
Take the Beyond the Cancer Diagnosis Survey...The Beyond the Cancer Diagnosis Survey is now closed. Thank you for your interest! Receiving a cancer diagnosis can change life as you know it. While some treatments and side...reactionscomments
Starting Chemotherapy: A Comic...You've been diagnosed with blood cancer. What comes next? Usually, it's treatment. There are many different treatments for blood cancer, one of the most well known being chemotherapy. You may...reactions22comments
Working Wish List With Myeloma...Having any form of a chronic situation can be very difficult. We know the script whether it’s the demanding treatment with hopes your body cooperates or managing your day-to-day while...reactions10comments
More Tips For The Caregiver...Every day I notice helpful things we can do for others. I notice these things because people have been kind to me and when I see people being kind to...reactions11comments
Veins...What and where have been the best source for the best vein when it comes to your lab work? My left arm was the top banger, but literally, when I...reactions18repliesCopingSide EffectsTips & Advice
The Power of One Word ...After being diagnosed with Blood-Cancer I found myself chasing many emotional rabbits without much success. Slowly a sense of balance returned by focusing on the meaning of a single word...reactionsrepliesCoping
Leave the Shoes...There is a tradition for Olympic wrestlers to leave their wrestling shoes on the edge of the mat when they have wrestled the last match of their career. When I...reactions6comments
Timely Awareness...Occasionally, unexpected and unplanned things happen in your life. Some things are good, others are not. My blood cancer diagnosis was one of those “not so good things.” Out of...reactions5comments
Can you relate?...This question is for the AYA (adolescent young adults) cancer survivors, Do you ever find yourself playing catch up with life because of your diagnosis?...reactions2repliesCopingDiagnosisAwareness
A Big Surprise...I was diagnosed with non-Hodgkin's Lymphoma at the end of April of this year. I had a 6 cm tumor, as well as my spleen, removed. The blood supply to...reactions59comments
Hoping for Hope...My husband was diagnosed with multiple myeloma almost 4 years ago. This diagnosis came roughly two weeks after his 40th birthday, and we had literally never heard of this disease...reactions9comments
There Is Light At The End Of The Tunnel...I remember driving from Big Bend Park in far west Texas toward Dallas and stopping in Abilene for dinner. I think I had fried chicken and when I got up...reactions21comments
