"Remission." That Word Has Power. Or does it?...Yesterday was an auspicious date for me. Yes, it was by birthday. Which one? Well, the scientists back at MIT are still trying to work it out, but it wasn’t...reactions36comments
Options Vs Options In Treatment...If you could fully decide on which route to go, would you be cool with oral medication or subcutaneous injections? I hate needles so you can guess my answer. What...reactions13repliesCopingTreatment
Aging with Blood Cancer: You're Going to Miss Us!..."OK, boomer!" is a dismissive retort, often disregarding or mocking baby boomers. Fellow baby boomers, do you remember how we would roll our eyes when our parents talked about how...reactions2comments
Rise to the Challenge...This month has been very challenging. To be transparent it's been hell on earth and I say that because the biggest below was losing my father this month. I have...reactions29comments
You Don't Have To Be Good ......I have a quote pasted on the kitchen window that reads. "You don't have to be good all of the time. You just have to be good when it's time."...reactions2repliesTips & AdviceAwareness
Hitting 60 While Coping With Blood Cancer...My heart feels like it’s going to beat out of my chest, as sweat drips into my eyes. My breath is laboring as I head down the last hill and...reactions31comments
Now for Something Different: GVHD of the Fingernail...Since the days when I started out as a cub reporter longer ago than I care to admit, the search for information has grown both easier and harder. Easier, of...reactions8comments
Tone Deaf to the Pain...I’ve been living with leukemia for a little over a decade now. To see me, you’d probably think I’m doing ok. I mean, I’m not one who likes to complain...reactions29comments
How do you describe your pain? ...How do you describe your pain? What do you do to manage it? Is it better or worse than when you were first diagnosed?...reactions15repliesCopingSymptomsSide Effects
Fulfilling A Bucket List...What is that number one on your bucket list of things to do and see? I've been around but Brazil was a must see on my list to visit before...reactions11repliesCopingTravel
Healthcare Team Conflicts...After speaking with a friend who was stumped by a medical staff that was not on point in serving her, I thought further about how many people deal (if at...reactions14comments
FeaturedSleep Patterns ...When your having trouble sleeping what do you do?...reactions26repliesAwarenessCoping
Recovering from Recovery...Many have asked if I have recovered from my run-in with blood cancer. My answer is a qualified YES, followed by a qualified NO. What the heck does that mean?...reactions14comments
Tips for Bad Days...When you have cancer you are going to have bad days. Sometimes they are related to blood cancer treatments and appointments, but some days you may just be depressed. We...reactions14comments
Experiences Surrounding My Diagnosis of Non-Hodgkin Lymphoma...A fellow cancer survivor recently asked me about my cancer experience. She discussed her initial symptoms and was surprised that I had none. My diagnosis was an incidental finding. While...reactions9comments
Ode to Phil...Do you ever encounter someone who restores your faith in humanity? I did. But, in my case, he restored my lagging trust in the medical profession. Don’t get me wrong...reactions6comments
My Furry Purry Friend - Part 1...Animals are wonderful. Not only to watch in their natural habitat, but also if you’re lucky enough to have one waiting for you at home, it’s a pretty special experience...reactions19comments
Supportive Pets...Do you have a pet-hero who has helped you cope with your blood-cancer? How have they helped you? Share their story and upload their picture....reactions16repliesFriends & FamilyCoping
What To Expect In That First Month After Diagnosis...“You have cancer.” Those three words change your life forever. Nothing is ever the same from then on, but that doesn’t mean it has to be all bad, especially if...reactions13comments
Bidding a Not-so-Fond Farewell to Prednisone...If you saw me walking years ago, when I was on 40 milligrams of prednisone, you might have thought I was drunk. I swayed back and forth. I sometimes drifted...reactions9comments
