Tips for Out-of-Town Appointment Anxiety...Recently I headed to Mayo for a yearly visit that was postponed due to the pandemic. It had been two years since I had seen my blood cancer specialist, and...reactions12comments
Appointments...Do you have a routine for your medical appointments, whether local or out-of-town? Do you have something you always bring with you, either for comfort or to keep yourself busy?...reactions4repliesHealthcare Team
Epic, epic news...I had my 4-week appointment today with my consultant and as in all likelihood, by the time I have my next one, the baby will be here, I asked a...reactions13comments
Humpyear - Beyond the Halfway Point...“Mike...Mike...Mike...Mike...Mike...What year is it? It’s hump year.” I didn’t quote that iconic advertisement perfectly, but I’m sure you all get the point. Maybe not as good as me, considering my...reactions8comments
Power of No...Do you find it now easier for you to say no to things you don't want to do when it comes to treating your condition? Or is it still a...reactions10repliesCopingTips & AdviceTreatment
Two Canes and a Wheelchair...Or...How I’m Rolling with Side Effects Does anyone else remember the movie, “Four Weddings and a Funeral?” Well, these days my life has become “Two Canes and a Wheelchair.” And...reactions8comments
The Importance of Good Communications By Doctors...A good relationship with your doctor can make a difference in the treatment of your blood cancer. Good communications with your doctor can improve your ability to navigate the challenges...reactionscomments
"Remission." That Word Has Power. Or Does It?...Not long ago was an auspicious date for me. Yes, it was my birthday. Which one? Well, the scientists back at MIT are still trying to work it out, but...reactions37comments
Options Vs Options In Treatment...If you could fully decide on which route to go, would you be cool with oral medication or subcutaneous injections? I hate needles so you can guess my answer. What...reactions13repliesTreatmentCoping
Aging with Blood Cancer: You're Going to Miss Us!..."OK, boomer!" is a dismissive retort, often disregarding or mocking baby boomers. Fellow baby boomers, do you remember how we would roll our eyes when our parents talked about how...reactions2comments
Rise to the Challenge...This month has been very challenging. To be transparent it's been hell on earth and I say that because the biggest below was losing my father this month. I have...reactions29comments
You Don't Have To Be Good ......I have a quote pasted on the kitchen window that reads. "You don't have to be good all of the time. You just have to be good when it's time."...reactions2repliesAwarenessTips & Advice
Hitting 60 While Coping With Blood Cancer...My heart feels like it’s going to beat out of my chest, as sweat drips into my eyes. My breath is laboring as I head down the last hill and...reactions33comments
Now for Something Different: GVHD of the Fingernail...Since the days when I started out as a cub reporter longer ago than I care to admit, the search for information has grown both easier and harder. Easier, of...reactions8comments
Tone Deaf to the Pain...I’ve been living with leukemia for a little over a decade now. To see me, you’d probably think I’m doing ok. I mean, I’m not one who likes to complain...reactions32comments
Active 3 days agoHow do you describe your pain? ...How do you describe your pain? What do you do to manage it? Is it better or worse than when you were first diagnosed?...reactions29repliesSymptomsSide EffectsCoping
Fulfilling A Bucket List...What is that number one on your bucket list of things to do and see? I've been around but Brazil was a must see on my list to visit before...reactions11repliesCopingTravel
Healthcare Team Conflicts...After speaking with a friend who was stumped by a medical staff that was not on point in serving her, I thought further about how many people deal (if at...reactions14comments
FeaturedSleep Patterns ...When your having trouble sleeping what do you do?...reactions26repliesAwarenessCoping
Recovering from Recovery...Many have asked if I have recovered from my run-in with blood cancer. My answer is a qualified YES, followed by a qualified NO. What the heck does that mean?...reactions14comments
