How to Handle Fatigue...Fatigue is something we all will face on this journey. It's important to know how to handle it in order to be able to bounce back well. Keep in mind...Reactions0reactionsComments25 comments
CML Awareness Day is September 22...Since I first heard about it, I always thought it was very clever of someone to designate a day for chronic myeloid leukemia (or chronic myelogenous leukemia) on September 22...Reactions0reactionsComments12 comments
How Leukemia Changed a Tycoon's Priorities...Leukemia can sneak up on you from behind or maybe jump out from behind a bush. That is figuratively, of course. You don’t expect it to jump out at you...Reactions0reactionsComments8 comments
Meeting Another Blood Cancer Survivor: Ramae's View...It was a warm August night, and I was on my nightly bike ride along the lake. But this evening, I was on my way to meet up with another...Reactions0reactionsComments5 comments
The Time For Change...Have you gotten in a bind with your doctor and team and feel that the time has come for a change? What are your go-to's in making the decision to...Reactions0reactionsComments15 repliesHealthcare TeamTips & AdviceCoping
Anyone here have Polycythemia?...I got this diagnosis yesterday and would like to hear from anyone who has also been diagnosed with this condition. I’m at a loss as to what happens next. I...Reactions0reactionsComments9 replies
Patient Advocate or Patient Advocate...I’ve had a few past and present conversations and found when we throw the term "patient advocate" in the air; what I’ve learned what should be considered a slam dunk...Reactions0reactionsComments9 comments
Extreme cramping...Anyone experience extreme cramping? After treatment or a transplant?...Reactions0reactionsComments10 repliesCopingAwareness
There's More To Me Than Cancer...Cancer is a heavy word and for most people. It has a very negative connotation and I don’t think I’ve met anyone who hasn’t been touched by it. Maybe not...Reactions0reactionsComments29 comments
Meeting Another Blood Cancer Survivor: Deb's View...As we watched the sun dip low in the sky over Lake Bemidji that early August evening, we thought how small our world really is. Ramae and I are both...Reactions0reactionsComments25 comments
FeaturedAre you living with a rare blood cancer?...What rare blood cancer were you diagnosed with? Share and connect with others living with a rare blood cancer in this forum!...Reactions0reactionsComments19 replies
Everything's Gonna Be Alright...Having a positive attitude when facing any of life’s trials is important. At least that’s my opinion. Nature and life have a way of working things out. Although it’s not...Reactions0reactionsComments3 comments
What "New Normal?" ...I believe what we often call " the new normal" after a cancer diagnosis and treatment is not about finding some kind of renewal. Nor do I think it is...Reactions0reactionsComments5 repliesAwarenessTips & Advice
Camp Lejeune toxic water...I was stationed at Camp Lejeune from "85 til '88. Around 1992 on a routine physical my platelets were elevated. In 1996 while stationed at NMC Portsmouth I developed DVTs...Reactions0reactionsComments0 replies
Panda Check-In...I don't know about you all, but this has been a rough year! The trial and tribulations of life have been throwing rocks at me left and right unfortunately. So...Reactions0reactionsComments16 comments
Blood Cancer Awareness Month Giveaway...The Blood Cancer Awareness Month Giveaway is now closed. Thank you for your interest! We are honoring Blood Cancer Awareness Month this year, themed "Navigating the New Normal," with a...Reactions0reactionsComments0 comments
Onset of Other Issues...What some fail to realize is that stable numbers in cancer or a remission... well, doesn't mean that onset of other issues stay at bay. I've been complaining for about...Reactions0reactionsComments9 repliesCopingAwarenessSide Effects
Blood Cancer Awareness Month: Navigating the New Normal...September is Blood Cancer Awareness Month (BCAM). We all know that a blood cancer diagnosis is life-changing, and that is why this year we want to bring awareness to what...Reactions0reactionsComments0 comments
Genetics or environment?...Both my one brother and I have been diagnosed with multiple myeloma. I can see where genetics play a part but he and I wonder about an environmental factor since...Reactions0reactionsComments4 replies
Large B Cell Lymphoma...On May 13, 2022, I was diagnosed with large B cell lymphoma. Today, July 20, I had my first chemo treatment. It is a two-day treatment every three weeks....Reactions0reactionsComments0 comments
