RelapseHave you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...Reactions0reactionsComments7 repliesCopingTreatmentDiagnosis
Treatment WonderHow often (if at all) do you wonder about the treatment you're on and is it the best option for you? Sometimes we go with the flow (rightfully) but have...Reactions0reactionsComments3 repliesCopingResearch & Clinical TrialsTreatment
Chemo med changeMy platelets recently went up drastically when my mail order pharmacy changed my hydroxyurea from one manufacturer to another in November. I just changed to a new pharmacy this year...Reactions0reactionsComments2 repliesTreatmentAwareness
Access to clinical trials from overseaHi everyone, I have a question re clinical trials. My mom is 59 y.o. with MLL-r AML. She is now 15 months after allo-HSCT and had molecular relapse (dPCR positive)...Reactions0reactionsComments6 repliesResearch & Clinical TrialsTreatmentLeukemia
MDS Patient August 2023I was diagnosed with MDS and my worst symptoms are horrible skin itching and burning. I have been reading blogs about this. I would love some suggestions on creme or...Reactions0reactionsComments4 repliesTips & AdviceTreatmentMDS
Why ? Why didn’t my Dr. Say anything about a bone marrow transplant? I’m only 71 in great shape. It’s a blood test every 3 months and wait and see what’s next....Reactions0reactionsComments3 repliesTreatment
New OptionsWell in the myeloma and I believe lymphoma world there's been a newly FDA-approved drug Teclistamab, which is a bi-specific antigen. Are you excited about these new lines of treatment...Reactions0reactionsComments0 repliesResearch & Clinical TrialsTreatmentMultiple Myeloma
CLL ForumWelcome to our CLL Community Forum – a Safe Haven for Sharing, Learning, and Connecting. Whether you're a patient, caregiver, or simply seeking information, join us to discuss experiences, treatment...Reactions0reactionsComments3 repliesTreatmentTips & AdviceAwareness
Chemo, Treatments and Side Effects: The Stuff they FORGOT to Tell You!All of us with blood cancer don't necessarily go through chemotherapy. But most of us go through some form of treatment... We are familiar with the "usual" side effects, but...Reactions0reactionsComments33 repliesSide EffectsTreatment
T-PLLI started with CLL and was diagnosed with T-PLL A year ago January I started Campath and was in remission after 8 weeks. Still in remission. I’m 78 years old....Reactions0reactionsComments2 repliesTreatment