Truth TellerHow comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care? Do you think they leave room to exaggerate...Reactions 0 reactions Comments6 repliesTreatmentDiagnosisHealthcare Team
HydroxyureaI've been taking Hydroxyurea, 1000 mg a day for almost 6 years now. My platelet numbers hang out between 350-450 on average. I know the medication itself could give me...Reactions 0 reactions Comments1 repliesTreatment
Anyone else living with a jak-2 mutation?Question from a member: I was diagnosed two and a half years ago with a jak-2 mutation. My plates were 720 . I am taking Hydroxyurea and am staying around...Reactions 0 reactions Comments6 repliesTreatment
56 years years old and Just been diagnosed with PV blood cancerI haven't started treatment yet but My concern has been more about how I will feel under treatment since I have to take this treatment for years to come, hopefully...Reactions 0 reactions Comments3 repliesFatigueNewly DiagnosedTreatment
FeaturedThe In-Between PlaceHave you ever felt like you are in-between active blood cancer and remission? How do you deal with life in-between?...Reactions 0 reactions Comments4 repliesTreatment
Watchful WaitingHave you, or are you, under "watchful waiting" following your diagnosis? How comfortable are you with this?...Reactions 0 reactions Comments1 repliesTreatmentNewly Diagnosed
Future of Liquid BiopsiesIs it me or are you hopeful of the day when BMX (Bone Marrow Biopsies) and the process of finding and knowing are better achieved, with the same accuracy but...Reactions 0 reactions Comments7 repliesCopingMultiple MyelomaTreatment
Options Vs Options In TreatmentIf you could fully decide on which route to go, would you be cool with oral medication or subcutaneous injections? I hate needles so you can guess my answer. What...Reactions 0 reactions Comments13 repliesTreatmentCoping
mds-mld-lowI have had 6 rounds of vidaza and have 7th round of vidaza scheduled for June 6th --question one and all - my blood ratios are moving to right direction...Reactions 0 reactions Comments11 repliesMDSFatigueTreatment
Stopping TreatmentA community member messaged us and asked the following: "Hi there I have CML. I'm I was diagnosed in July 2017. I started on dasatinib a month later. I have...Reactions 0 reactions Comments8 repliesTreatment