CLL ForumWelcome to our CLL Community Forum – a Safe Haven for Sharing, Learning, and Connecting. Whether you're a patient, caregiver, or simply seeking information, join us to discuss experiences, treatment...Reactions 0 reactions Comments3 repliesTreatmentTips & AdviceAwareness
Chemo, Treatments and Side Effects: The Stuff they FORGOT to Tell You!All of us with blood cancer don't necessarily go through chemotherapy. But most of us go through some form of treatment... We are familiar with the "usual" side effects, but...Reactions 0 reactions Comments33 repliesSide EffectsTreatment
T-PLLI started with CLL and was diagnosed with T-PLL A year ago January I started Campath and was in remission after 8 weeks. Still in remission. I’m 78 years old....Reactions 0 reactions Comments2 repliesTreatment
Power of NoDo you find it now easier for you to say no to things you don't want to do when it comes to treating your condition? Or is it still a...Reactions 0 reactions Comments10 repliesTips & AdviceTreatmentCoping
If You Could...If you could where would you want your treatment care to take place? *Another Country *On a Beach *Clean & Sterile & everything in White *Stay Where I'm At Though...Reactions 0 reactions Comments25 repliesCopingMultiple MyelomaTreatment
Watch and Wait?What are your thoughts on waiting it out before starting treatment for your blood cancer? Does it make sense or would you prefer to start early and get the process...Reactions 0 reactions Comments45 repliesCopingTreatment
What to do when treatment has stopped workingI was diagnosed with primary myelofibrosis in 2022 at age 79. I started treatment with weekly injections to stimulate my bone marrow to produce more red blood cells. It worked...Reactions 0 reactions Comments7 repliesCostTreatment
Truth TellerHow comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care? Do you think they leave room to exaggerate...Reactions 0 reactions Comments6 repliesDiagnosisTreatmentHealthcare Team
HydroxyureaI've been taking Hydroxyurea, 1000 mg a day for almost 6 years now. My platelet numbers hang out between 350-450 on average. I know the medication itself could give me...Reactions 0 reactions Comments1 repliesTreatment
Anyone else living with a jak-2 mutation?Question from a member: I was diagnosed two and a half years ago with a jak-2 mutation. My plates were 720 . I am taking Hydroxyurea and am staying around...Reactions 0 reactions Comments6 repliesTreatment