Hodgkin’s lymphoma...Does anybody have this disease and what are their symptoms?...reactions2repliesCoping
Can Mindset Change Our Outcomes?...For most of my adult life, I have played with the concept that mindset is everything, and that our outcomes can be shaped by our beliefs. This started as a...reactions15comments
FeaturedChanneling...What is some of your go-to's when channeling positive energy with everything going on with your health? For me: Laughter, Limiting Social Media, and Food :)...reactions12repliesCopingTips & Advice
Health...Polycythemia, Jak2, Thromboembolism, Heart failure on the right side. Fibromyalgia, and Two arthritis. Erythrocytosis and I live with pain every day. I wake up tired and drained....reactions1replyAwarenessFatigueDiet & Nutrition
Learning, and Forgetting, Lessons About Pacing Myself...When I got home after my stem cell transplants, as soon as I felt a little better, I’d cautiously move around. First, it was walking around the house, then out...reactions9comments
What else do I have beside blood-cancer..Polycythemia vera, Hemochromatosis, PFO Stage III, with highly mobile aneurysm, Bels Palsy, Lichen Planus, Hypoglycemia. Hematologist treating with phlebotomies once monthly....Going thru anxiety, depression and major fatigue. Does anyone have similar ???...reactions3repliesNewly DiagnosedDiagnosisFatigue
SECOND BMB...Hello, Some of my lab results are showing an adverse trend. My doc wants me to have a second BMB to rule out the possibility of a mutation of my...reactions14replies
Living With Lucy Part 4...Now I need to tell you that Lucy is still mean. Yes, the targeted therapy helps, and I feel good. But my arms and hands get black and blue bruises...reactions3comments
Living with Lucy Part 3...Let’s talk about blood donations for a minute. First, thank you if you have ever donated blood and to those of you who are multiple-time donors, a huge THANK YOU...reactionscomments
Living with Lucy Part 2...That visit was soon followed by a hematologist/oncologist consultation because he specialized in dealing with folks who live with Lucy or one of her cousins. He explained that I was...reactionscomments
Living with Lucy Part 1...By Linda Gainey Smock Lucy is a mean girl. Oh, I know, not all girls named Lucy are mean. In fact, I have a friend named Lucy who is one...reactionscomments
Cancer Takes and Takes and Takes... Everything...I often think about weird things when I am drifting off instead of working. Things like “How does Superman shave?” and “Do dragons’ birthday cakes have candles they light instead...reactions22comments
MPN Diagnosis...I was diagnosed with Polycythemia Vera by my general practitioner, essential thrombocythemia by my hematologist and Myeloproliferative disorder by my oncologist take your pick. I was handling the diagnosis ok...reactionscomments
Surviving Multiple Myeloma Since 1992...When diagnosed with stage 3 myeloma in 1992, an oncologist gave him 3 years to live. Jim asked more questions that led to a new oncologist & hospital where he had...reactionscomments
ET? PCV?...My husband was diagnosed with blood cancer over ten years ago. They did all the blood tests, and bone marrow tests. It was narrowed down to either ET or PCV...reactions3comments
Multiple Myeloma...I'm 58 yrs old and 2 yrs ago I was diagnosed with multiple myeloma and stage 4 CKD. Since then I had stem cell transplant and I am in remission...reactions2comments
So?...For the past year and a half I felt so weak and fatigued. I had just moved down to a more so part of Arizona. I knew no one. My...reactions2comments
Telling My Kids That I Have Cancer...Of all of the difficult things that cancer has forced me to do, telling my kids the news was the hardest. My kids were 6, 8, and 10 years old...reactions5comments
Staying Healthy as a Cancer Survivor...As a cancer survivor, I was focused on care for my blood cancer and its follow-up. I was personally tired of physician appointments, diagnostics, and treatment. This was doubly troublesome...reactions4comments
Running the Race...At some point, all of us start on this particular race of life. Some of us have trained beforehand and others were not ready at all! We all have one...reactions10comments
