Cancer of the blood ...I was recently diagnosed with MSD leukemia..I start chemo june 6th...reactions2replies
You Are a Survivor!...One of the first terms I heard when I was first diagnosed with blood cancer was about "Survivorship."It doesn't take long before you are very aware that whenever you are...reactions41comments
Living Well with Cancer...Disclaimer: What follows is just what has worked so well for me that it has taken me from essentially being bed-ridden for the better part of nine weeks (including four...reactions2comments
Why People Treat Those With Cancer Badly...Lately a lot of people have been talking about how people treat you when you have blood cancer. Family, friends, at the doctor’s – it doesn’t matter where. Suddenly, things...reactions22comments
What about when you are ghosted by the person with Cancer?...I have a newish friendship of 2 months with a man. We just clicked on a natural deeper connection and felt like we had known each other for years. We...reactions3repliesFriends & FamilyCopingDiagnosis
A Hermits Life...I'm in my 3rd year of stage 3 CLL. My husband died of lung cancer the year before I was diagnosed. Having seen what he went thru I decided to...reactions10comments
Being Inquisitive Means Hope...The pressing words stating your body will no longer work the way it used to can scare the Be-Jesus out of many, and why wouldn’t it? This blood cancer journey...reactionscomments
Clinical Trials Conversations...I know a lot of people hit a wall as to how to bring the conversation up with their medical team on other options, besides the ones they may suggest...reactions6repliesAwarenessHealthcare TeamResearch & Clinical Trials
If you could give yourself one compliment regarding handling your blood cancer, what would it be?...Sometimes we focus on the hard parts of living with cancer that we forget to compliment ourselves for all the amazing things we do. Can you be proud and share...reactions19repliesCopingAwarenessTips & Advice
Polycythemia Vera...Hi. I was diagnosed with PV in 2017. I am on Hydroxvurea. 500 MG, 7 days per week. I have frequent phlebotomies but after the last phlebotomy, I got really...reactions1replyDiagnosisSymptoms
Play!...I just recently saw a TikTok video about a group of friends that were at a beach and decided to play the children’s game Duck-Duck-Goose. The caption read, “Groups that...reactions12comments
Does Having Blood Cancer Make Us Overly Sensitive?...Does having blood cancer make me overly sensitive to what others say? Please let me know if you feel that way too. The other day I was having an evaluation...reactions14comments
Common Misconceptions About Cancer Patients...A person's experience with blood cancer is unique to them. In my 7 years of survivorship and working in the cancer space, I have heard about every misconception you can...reactions11comments
What to do when treatment has stopped working...I was diagnosed with primary myelofibrosis in 2022 at age 79. I started treatment with weekly injections to stimulate my bone marrow to produce more red blood cells. It worked...reactions7repliesCostTreatment
Summer Outlooks...Well, Summer is almost here. I don't know about you but I'm looking forward to summer and positive vibes. We usually throw massive BBQ's but of course, during this pandemic...reactions14repliesFriends & FamilyCopingTips & Advice
Running To Verses Running From...Ever feel like you are running from blood cancer and it keeps catching up? Since being diagnosed with leukemia in 2011 I have found myself outmaneuvering, outthinking (if that’s a...reactions7comments
Almost 12 Bleeping Years...Early in my myeloma journey (nightmare, adventure, health scare, eye opener, what have you), my specialist said to me that the goal was to have me live long enough that...reactions12comments
In what way has your blood cancer diagnosis changed you the most?...I have changed in that I make stronger attempts at taking care of myself physically, mentally and spiritually. I still am not perfect, but I am so much more aware...reactions45repliesAwarenessCopingTravel
Coping with Cancer Stress...I have read that some oncologists compare a cancer diagnosis to post-traumatic disorder (PTSD). When you get the news, it is common to feel grief. In my case, I had...reactions11comments
Mays Cancer Center Smartphone Wellness Study for Blood Cancer Patients! ...Mays Cancer Center is seeking blood cancer patients, ages 18 and up and currently undergoing active treatment, to participate in a National Institutes of Health-funded research study lasting for 20...reactionsreplies
