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Read conversations, start a discussion, and connect with others about blood cancer.

When first diagnosed

Did anyone have absolutely no reaction when told you have "cancer" ... Ok ... "You have leukemia" ... ok. I wasn't scared, shocked, or upset. Have had to educate myself...

3 Blood Diseases (Cancer)

I have Multiple Myeloma, Myelodysplasia, and Vexas. SYNDRONE UBA1 was recently discovered by the National Institutes of Health in 2020 in Bethesda Maryland. Ohio State University James Cancer doesn’t know...

Sky high Platelets and Ferritin with MDS

Hi there, I was diagnosed with MDS two years ago. Yesterday my bloodwork showed very high Platelets (1,070) and Ferritin (400). My Doctor is confused and said I'm a "puzzle"...

Hairy Cell Leukemia

Hi All! Has anyone gone through treatment for hairy cell leukemia?...

Truth Teller

How comfortable are you with your care team (doctors and nurses) that they are being truthful on all fronts of your care? Do you think they leave room to exaggerate...

CLL mutation TP53

I can not find anyone who has experienced this!! Either firsthand or family/ friend. I know it's not good ,poor prognosis, etc. I was diagnosed in November. If you have...

Has anyone else in your family been diagnosed with a blood cancer?

Has anyone else in your family been diagnosed with blood cancer? If so, was it the same blood cancer or a different type?...

Thought We Were Dealing with CLL Only

Hi all, We went to the hematologist/oncologist today to get the results from my dad's bloodwork. He felt on the initial visit my dad has CLL. At this visit today...

Father Awaiting Possible Diagnosis

Hi All, New here. My 87 year old dad has been losing weight since December, not much appetite, now showing other symptoms like left flank pain, pain in knees, with...

Handling Misdiagnosis

Have you met being misdiagnosed with doctors over time with your disease? How have you handled or better yet rebuilding trust with other doctors? For me, a second opinion was...

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