Active 4 days agoBone Marrow Transplant For those who went through a bone marrow transplant what did you find the hardest going through transplant?...Reactions 0 reactions Comments7 repliesCopingAwarenessDiet & Nutrition
Active 8 days agoET and AnemiaI just heard on an MPN Facebook live program that rarely does a person with ET have anemia. If they do it means that they are in transformation. I have...Reactions 0 reactions Comments9 repliesMPN
What's one piece of advice you would give to someone newly diagnosed with blood cancer? Share your advice below!...Reactions 0 reactions Comments78 repliesNewly DiagnosedTips & AdviceDiagnosis
Which aspect of your blood cancer treatment journey has presented the biggest challenge?1. Managing treatment side effects and their impact on daily life? 2. Navigating the complexities of treatment options and decisions? 3. Coping with the emotional and psychological toll of treatment?...Reactions 0 reactions Comments13 repliesTips & AdviceCopingTreatment
How do you make sure you are heard by your doctor?Living with blood cancer can be challenging, and effective communication with your healthcare team is crucial to receiving the best care possible. Whether you have questions about treatment options, managing...Reactions 0 reactions Comments22 replies
Chemo - If you could magically remove one side-effect, what would it be?Chemo, even when it's good, it's still pretty bad. So I am asking - if you could magically remove one side effect of the treatment, what would it be? For...Reactions 0 reactions Comments2 repliesCoping
Has Anyone Minimized Your Diagnosis? Have you ever felt like someone has minimized your cancer experience? How so? How did you respond?...Reactions 0 reactions Comments34 repliesTips & AdviceIntimacy & RelationshipsFriends & Family
Navigating 'But You Don't Look Sick?'Living with a blood cancer diagnosis often means facing the challenge of an invisible illness, where outward appearances can be deceiving. It's a situation many of us have encountered, whether...Reactions 0 reactions Comments55 repliesFriends & FamilyTips & Advice
FeaturedChemo Prep Tips What are your burning questions or best practices to share about prepping for chemotherapy?...Reactions 0 reactions Comments21 repliesCopingSide EffectsTreatment
Blue ToesI have had Polycythemia Vera for four years now and I'm suffering from Polycythemia toes or Blue Toes. The big toes on each foot are swollen, red, raw and even...Reactions 0 reactions Comments3 replies