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My husband was just diagnosed with CLL! We are numb and scared ! Just trying to educate myself as much as I can before we see the oncologist on 11/4!
@ronnigordon I agree with you about showers – I love to just stand there and let the hot water run over me. I have very dry skin too. What I do, and it’s helped a lot, is to do a dry body brushing before showering. After showering I use a moisturizer and then a skin protective barrier cream. I make it out of coconut oil but you can buy them in the…
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Great advice. First, I feel sad your daughter was diagnosed, and then her boyfriend hurt her in the way he did. It’s true, I’ve learned that some will reach out, call, visit and just be there for you. But in the past 3 years I learned and finally accepted some, even family members won’t reach out or even drop a text. It hurt at first. Gradu…
I feel great!
I hope that your disease does not morph into something more serious, but it is nice to know that there are treatment options to consider if it does.
Thanks for your CAREING reply.
Vincent Goodwin commented on the post, From Passive By-Stander to Empowered Partner (Part 2) 3 days, 11 hours ago
@cindyc all of this is so inspiring and encouraging. “I am no longer a 5th grade teacher I am a Myeloma Teacher”. I can feel the sparks flying from coming to that realization. Thanks for being here and for sharing. I’m just gonna CC my good friend here: @sasplundh.
Hospice is a scary word and brings back memories of my mother’s death. With that being said, the care my mother got at the end of her life from hospice was phenomenal! Unfortunately, she wasn’t able to take advantage of all that was offered, but hospice brought in a comfortable bed and pain relief medication. She would have been able to receive at…
Exactly! The more they hear from us, the more they know how to do what they do so well… better!
Absolutely! I think it’s symbiotic. They need us too. Maybe not as much as we need them… but they need us!
@jim-smith A tough conversation to have with ourselves. I have some friends that are sick and I’m on a few sites where people are terribly ill and I send prayers their way – and I really do. We don’t know for sure what our fate will be after death but my thoughts are usually about where did all this come from? Us, the Earth, the universe – it had…
Welcome, @esplemremubip to the forum. Please let us know if you have questions maneuvering the site. Best
Welcome, @quepecenmori to the forum. Please let us know if you have questions maneuvering the site. Best
I agree there is a lot more that can be done, but one of the biggest issues is reaching those to have the conversations needed. I guess this is where patient advocates come into play, but sometimes I feel most of these companies still don’t ask the right questions at the right time. There’s room to do a bit here but I feel somethings…