Profile picture of Rondakay

Rondakay commented on the post, Fear and Worry 4 hours, 4 minutes ago

I felt so alone until I read your post. No one around me understands what I’m going through. I’m almost 2 years out from stem cell transplant and worry seems to be my best friend. .thanks for your story.

Profile picture of Rondakay

Rondakay posted an update 4 hours, 20 minutes ago

Hi my name is Ronda, looking for someone with some similar diagnosis. I was diagnosed in 2011 with NHL stage 4 and through treatment it changed to Folliicure Lymphoma. I was cancer free for 6 years and then found a lump under my arm. I have gone through a Stem Cell Transplant, Aug will be 2 years… always worried about it coming back.

Profile picture of Sherri

Sherri posted an update 1 day, 21 hours ago

Hello I have been having routine blood work threw my RA due to some symptoms I am having and my white count and platelets keep coming back low she has made me a appointment with a hematologist/oncologist in couple more weeks but I’m getting really scared not sure if I should just go er.i tell my doc on my portal about the extreme rapid weight loss…

Profile picture of Carole McCue

Carole McCue commented on the post, Cooties and the Mask 1 day, 23 hours ago

Yolanda,
You are so right. We who have blood cancer may be immunosuppressed. I was experiencing freq colds. I now take extra vitamin C, avoid anyone who is sick and have stopped shaking hands in church during mass.
Thank you for raising awareness.

Profile picture of c.e.connely@gmail.com

C. E. Connely commented a story 1 day, 23 hours ago

Thank you for the compliment. After my oncologist read my article, she told me a lot of her patients have the same experiences with people giving unsolicited advice. Best of luck to you!

Profile picture of bspaanstra

bspaanstra commented a story 2 days ago

Pamela

I’m glad I found this site too! Going through something like this can be lonely without anyone really understanding. I’ll let you know what I find out on 6/24.
Bruce

Profile picture of Pamela Kline

Pamela Kline commented a story 2 days, 1 hour ago

@bspaanstra – I’m sorry to hear about your recent diagnosis but I’m so glad you found our community! We will be thinking of you as you visit the hematologist. Please keep up posted on how you are doing! – Pam (Team Member)

Profile picture of Racheli Alkobey

Racheli Alkobey replied to the topic Lymphoma Discussion Board in the forum General Discussions 2 days, 2 hours ago

Hi Crystal! I had a very similar experience as you. I started with ABVD but because of my lung damage, I finished off with AVD. I also experienced blood clots in my lungs because of my port. I am so sorry you are now experiencing this scare… have you heard back on any of this and has it continued? I’m really proud of you for being an advocate…