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I felt so alone until I read your post. No one around me understands what I’m going through. I’m almost 2 years out from stem cell transplant and worry seems to be my best friend. .thanks for your story.
I totally agree!
Prayers for you!
Hi my name is Ronda, looking for someone with some similar diagnosis. I was diagnosed in 2011 with NHL stage 4 and through treatment it changed to Folliicure Lymphoma. I was cancer free for 6 years and then found a lump under my arm. I have gone through a Stem Cell Transplant, Aug will be 2 years… always worried about it coming back.
Congratulations! When I saw the headline I thought that maybe I had written the post and forgotten, because I also turned 10 this year. (Stem cell transplant for acute myeloid leukemia.)
Getting ready go back to Little Rock tomorrow for follow up see if transplant worked
One of the hardest things I have learned to do after my diagnosis is to say no. Now that I am in remission I am starting to say yes again, but only when I want to. I think the cancer card earns us the right to just say no.
Congratulations on 10 years! Milestones indeed become more significant. I am looking forward to turning 1in a few months.
Hello I have been having routine blood work threw my RA due to some symptoms I am having and my white count and platelets keep coming back low she has made me a appointment with a hematologist/oncologist in couple more weeks but I’m getting really scared not sure if I should just go er.i tell my doc on my portal about the extreme rapid weight loss…
You are so right. We who have blood cancer may be immunosuppressed. I was experiencing freq colds. I now take extra vitamin C, avoid anyone who is sick and have stopped shaking hands in church during mass.
Thank you for raising awareness.
Thank you for the compliment. After my oncologist read my article, she told me a lot of her patients have the same experiences with people giving unsolicited advice. Best of luck to you!
I’m glad I found this site too! Going through something like this can be lonely without anyone really understanding. I’ll let you know what I find out on 6/24.
This is terrific. Thank you so much for sharing.
@bspaanstra – I’m sorry to hear about your recent diagnosis but I’m so glad you found our community! We will be thinking of you as you visit the hematologist. Please keep up posted on how you are doing! – Pam (Team Member)
Hi Crystal! I had a very similar experience as you. I started with ABVD but because of my lung damage, I finished off with AVD. I also experienced blood clots in my lungs because of my port. I am so sorry you are now experiencing this scare… have you heard back on any of this and has it continued? I’m really proud of you for being an advocate…
I have a notes section in my phone that I document everything I am experiencing in and relay it to my healthcare team.