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So grateful to have found this support group. Today is yet another gift from God! Multiple Myleoma tries to taks me down on a daily basis. But I plan to prevail.
Hi @Kitkat83, Welcome to Blood-Cancer.com! My name is Anthony and I am a moderator on the site. To help you get the best experience and information, I’d love to learn about what you are looking to get out of joining this site. So, what brings you to blood-cancer.com? -Anthony (Team Member)
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Hey @martha – Welcome to the community! I am so glad to hear you are doing good. My name is Anthony and I am a site moderator. I’d love to try to help you connect with others in the community who are going through similar experiences. What are you looking to get out of this website? If you’d like to start by sharing your story, click here:…
Hi @shayes99! So glad to hear you are feeling good! We would love to get to know you and your story – I f you feel comfortable sharing, you can share on our community story board, here: https://blood-cancer.com/stories. Sending positive thoughts your way, – Anthony (Team Member)
Easier said than done, because I stay up way too late looking up this and that on the computer, but get off the internet! Read or listen to a book or find an easy-to-watch TV show. What are your interests?
@babygirl0308 – I’m so glad you advocated for yourself to get blood work done since you knew you were not getting better. A woman recently asked what to expect from her upcoming transplant. Here is the link if you’d like to help her understand what to expect: https://blood-cancer.com/q-and-a/sct-expectation/! Thank you so much for sharing your…
Ronnie thanks so much for replying. I am a worry wart but i realize I need to have faith and stop worrying so much. I have read so much on line its real scarey. Thanls again
I can’t seem to reply to your question about where I had my transplant. It was at the Dana-Farber Cancer Institute in Boston. I also used to worry a lot because that’s my nature, and I still do it. A nurse who became a friend used to sit on the edge of my bed and say, “They’ll figure it out.” You just have to try to give it up to the experts and…
I started doing Rodney Yee’s chair yoga when I couldn’t go out while recovering from my transplant, and now I go to class several times a week. I really love it but am not that disciplined about doing it at home but am usually glad when I do. I know what you mean about how hard it is to quiet the mind and how yoga is a helpful way to at least try!
Ronnie thanks for the info. I cant wait to get it over with. Induction chemo made me feel pretty crappy. I will be having my SCT at Penn Medicine Hershey Cancer center. Where did you have your transplant? I am worried about being so weak and getting sick. But I have to do it. Sometimes I still cant believe it.
The procedure itself is no big deal! Your cells come in a bag like any transfusion, and in they go through your catheter. A nurse sits with you and monitors you the whole time. You might feel pretty bad during and after the chemo leading up to the transplant. But the cancer center where I was, and I assume the others, have good drugs for just…