MDS Watch and Wait...Hi everyone! I am on Watch and Wait for MDS. My MDS diagnosis is Refractory Anemia with Multi Lineage Dysplasia (Red blood cells and Platelets). I've been on Watch and...Reactions0reactionsComments30 repliesMDS
Get a Second Opinion...I could go on and on about my first kidney doctor. But I am trying to my blood pressure down, so I’ll keep it short. When first diagnosed, my kidneys...Reactions0reactionsComments9 comments
Adolescent and Young Adult Cancer Survivors...I want to specifically speak with the adolescent young adults (AYA) dealing with cancer. I find that there are lot of gaps for needs within this specific age group. There's...Reactions0reactionsComments23 comments
Coping with Neuropathy...A few years now in remission, but I still suffer from faint neuropathy in my left thumb. Luckily, it's not every day but still a reminder of the battle wounds...Reactions0reactionsComments29 repliesCopingSide EffectsSymptoms
Has anyone else in your family been diagnosed with a blood cancer?...Has anyone else in your family been diagnosed with blood cancer? If so, was it the same blood cancer or a different type?...Reactions0reactionsComments3 repliesFriends & FamilyDiagnosis
Like Mother, Like Daughter...I was the primary caregiver for my mother for about four years. A duty I would happily do over again! I watched my mother suffer as she spent all day...Reactions0reactionsComments1 comments
Halting Your Dreams While Sick...*Authors note: I curse in this a LOT I was so sure I was going to be on Broadway (I mean, I still could be) but blood cancer went and...Reactions0reactionsComments26 comments
The Long Journey...At the young age of 36, I was diagnosed with the “older peoples” disease of CLL. Despite the diagnosis, I moved forward with marriage and family. I was told I...Reactions0reactionsComments0 comments
My CLL Diagnosis...I was diagnosed with chronic lymphocytic leukemia (CLL) in 2015. My cancer was discovered at the same time that I was diagnosed with ovarian cancer. Due to the symptoms that...Reactions0reactionsComments12 comments
Pros vs. Novice (at Coping)...I think it’s fair to say no one living with blood cancer wants to be labeled as a pro in dealing and coping; however, there can be a lot said...Reactions0reactionsComments23 comments
Marking Milestones and Memories Post Diagnosis...October is an important month for me and it has taken on more significance over the past eight years. Toward the middle of the month back in 2014, I received...Reactions0reactionsComments14 comments
Another Pill Bites the Dust...When my daily meds included folic acid at the start of my chemotherapy, I remember the conversation around it so clearly that it could have been yesterday, though it was...Reactions0reactionsComments6 comments
Holiday Rescues...Now that everyone is out and about in the world, what will be some of your holiday go-to's as the year winds down? I know it's been a rough stretch...Reactions0reactionsComments13 repliesFriends & FamilyCoping
Recovery Time ...Is this me or is this anybody else? When you happen to get a cold or a sinus infection, does it take you longer than a person who hasn’t been...Reactions0reactionsComments12 repliesAwarenessCoping
My E-Bike Has a Battery When Mine Runs Out!...It’s been over 4 years since my myeloma diagnosis and over 3 since I was declared in remission. It has been almost 5 years since my last 5K race and...Reactions0reactionsComments28 comments
The Benefits of Exercise for Cancer Patients and Survivors with Andrea Leonard...Recently, I had the pleasure of talking with Andrea Leonard, President of the Cancer Exercise Training Institute, about the importance of exercise during cancer. Andrea became interested in fitness after...Reactions0reactionsComments8 comments
Our Two Blood Cancer Family...In the early spring of 2014, I gradually began feeling inordinately bone-tired; the slightest exertion suddenly required a major effort. Just making dinner for two took every ounce of self-discipline...Reactions0reactionsComments13 comments
My Health vs My Bills...How many of us have considered our health as we balance our expenses? This situation is mired in difficulties, but for many of us it’s an everyday occurrence. My groceries...Reactions0reactionsComments10 comments
Courtesy Rules for Cancer Patients..."Oh, you look so tired!" Hee hee hee! Bless your heart!" My coworker often said to me on Fridays. At times, I felt like saying, "SHUT UP!" Now, my coworker...Reactions0reactionsComments34 comments
Scanxiety and Schrodinger's CATscan...Anxiety. It comes hand-in-hand with a cancer diagnosis and is so thoroughly entwined with the disease that it should probably be called cancerxiety. Anxieter? No wait… I got it. Canxiety...Reactions0reactionsComments14 comments
