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Read conversations, start a discussion, and connect with others about blood cancer.

T cell PLL

Diagnosed in July of this year with a very rare form of leukemia. I am in the inactive stage, called wait and watch. I am closely monitored with blood work...

Nk T Cell Non Hodgkins Lymphoma unlikely patient

Hi there, are there any other NK T Cell non Hodgkins lymphoma people out there? I am the very rare patient to match my rare diagnosis: a 35 year old...

Relapse

Have you relapsed and if so what has that been like for you? How did you feel about it? What questions are you now apt to ask your healthcare team?...

I have Essential Thrombocythemia.

I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of people with ET get PH. Has anyone else...

AML with flt-3

If this is your mutation, tell me how you’re doing. How long since diagnosis, what treatments you’ve had, how you’re coping and what symptoms you do you deal with now?...

Wins and Interruptions

You never know... sometimes it flows the way it's supposed to and other times, there are a few hiccups between the stops. What was 1 win towards your health in...

Coping Strategies and Lifestyle Changes: Sharing Experiences and Support

This space serves as a supportive community where we can come together to share our experiences, insights, and challenges related to blood cancer. Whether you have been recently diagnosed or...

How I was diagnosed with cancer….

I noticed that there is a pattern and usually it’s a strange pattern of how someone finds out that they’re diagnosed with cancer. I definitely had my own strange symptoms...

I Need Help/Does anyone have expierence with MPAL?

Hello dear members, dear parents, I feel totally helpless. I hope to find help here. My 4 year old son Mica was diagnosed with leukemia (AML) in December 2021. He...

Vidaza treatment vs bone marrow transplant

I’m 56y/o male diagnosed with MDS this past April. I just finished my 3rd round treatment.I’m considered high risk. The treatment I’m doing now is Vidaza. My Dr. said it’s...

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