Fun with PhototherapyOne of the most miserable symptoms of polycythemia vera (PV) is pruritus or itching. I was pretty desperate when I had my first...reactions7comments
Living With Blood Cancer and Additional CancerWhen you are diagnosed with blood cancer, most doctors will do their best to try to prepare you for the future. You...reactions7comments
Job Hunting Presents Challenges for Blood Cancer PatientI’m back in the job hunt rat race. First impressions? It’s not pretty. Looking for a job and holding down a position...reactions1comment
Having To Be Strong, AgainI don’t want to say too much. It’s all bit raw. Processing. It looks like big change is about to happen. Not...reactions1comment
When Everyone Else Tells You How To CancerYou are a cancer warrior! You are a survivor! You are a fighter! You are a one-eyed-one-horned-flying-purple-people-eater! When you have blood cancer...reactions12comments
Preparing for a Complete Blood Count"She's difficult!" I overheard the phlebotomist say while looking at my arm. WHAT?! I thought. I just said, "Good morning," when I...reactionscomments
No One Tells You This About Blood Cancer We have heard the joke about the 2 big certainties in life being taxes, and death. And while we can certainly avoid...reactionscomments
Bottoms Up: A Peri Care StoryI was diagnosed with chronic myelogenous leukemia in 2011. Having an autoimmune disease means trying to avoid infections wherever we can. My...reactionscomments
A Challenging Age to Have CancerLooking back on my experiences I was privileged as a cancer patient. Being diagnosed with AML at 15 was only relatively challenging...reactions3comments
Did You Hear the One About the Benefits of Neuropathy?While on a walk with friends on a cold winter day, with slush underfoot, I had a secret weapon that you wouldn’t...reactions5comments
Fighting the FatigueFor us blood-cancer patients fatigue can hit pretty hard. It’s like a weight that gets heavier and heavier. I was diagnosed with...reactions37comments
Cancer-Related Fatigue Can Be IncapacitatingEveryone gets tired and usually, a good night’s sleep will solve the problem. However, fatigue is a daily lack of energy, excessive...reactions4comments
I Choose Joy In The New Year!Do you have a New Year's tradition that you follow? The custom is to eat black-eyed peas on New Year's Day in...reactions11comments
Enough AlreadyWhen I was a kid, before the internet, I loved getting novelty catalogs. I'd scour them for hours on end, planning for...reactions2comments
Surviving SurvivorshipEverything about cancer sucks, we all know that. I wasn’t unusually surprised by how hard cancer treatment was, but I was shocked...reactions1comment
Surviving Blood Cancer: Lessons from a TV ShowRecently I came across a TV series called I Survived. The show is about people who have made it out of harrowing...reactions11comments
Diagnosis Rulebook 101There are no instructions or directions on how to adjust and feel about being diagnosed with blood cancer. The route will allow...reactions16comments
Don't Judge What You Don't SeeThe saying “Don’t judge a book by its cover” and how it relates to blood cancer is an accurate statement. Though we’ve...reactions23comments
"Invisible Illness" Never Invisible, Always IllnessInvisible illness. It’s a term that sometimes gets thrown around for certain kinds of blood cancer. Yes, cancer, the big C, the...reactions24comments
You have WHAT? Explaining MDSJust my luck to get something no one understands! "You have WHAT? MDS? Don't you mean MS?" people have said to me...reactions20comments
