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Learning I have Chronic Lymphocytic Leukemia (CLL)

In September, I went in for my annual mammogram. All was good with it but the lymph nodes in my armpit were enlarged. Blood work showed my WBC was really high.

I then saw the oncologist, learned I have CLL and started chemo in November. I’ve had treatment for 4 months. My count is down. He told me when I started, we would do 6 months and then a pet scan to see how they are doing. I had one before I started and it showed only the lymph nodes under the arms were enlarged. The oncologist has mentioned starting me on a chemo pill after I finish my infusion treatments.

This has been a journey that you never want to face. My husband has been with me all the way. I have never been sick from the treatment but I am tired and very impatient. My body aches all the time. I know the chemo is working.

My friends and family live miles away but are always checking on me and supporting me. As I have always been told God has a plan for us, I know he is watching over me. I pray for all those facing their journey. God bless you all.

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Comments

  • Crystal Harper moderator
    4 months ago

    It’s so hard to live far away from family, but it’s great to hear that they’re still so supportive and loving. A good support system makes all the difference when going through something so tough. Praying for the next 2 months to fly by before you get your scan! Please keep us posted on your results.

  • Jim Smith moderator
    4 months ago

    You are fortunate to have a loving spouse to support you. Mine does as well. It makes the CLL journey a bit easier. I too have CLL and by coincidence received my news in a September too, but that was clear back in 2009. Godspeed to you and your family.

  • Yolanda Brunson-Sarrabo moderator
    4 months ago

    @lred55 I’m so happy you have a great support system in place with your husband and friends. Faith can be so important more in these times. We have here in this group many on the same journey, but varied outlooks- hope is the shared consensus! Best to you.

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