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A Challenging 2018 with Waldenstrom Macroglobulinemia

My husband was diagnosed with Waldenstrom Macroglobulinemia early in 2018, at 57 years old. He started chemo and immunotherapy in February.

His last chemo treatment was July 3rd, and he will continue with the immunotherapy until our next trip to MD Anderson in Houston next month.

What a year!

We have dealt with the shock, treatments, neuropathy, depression, and fear.

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Comments

  • Ann Harper moderator
    6 months ago

    I hope all goes well with your visit. Please keep us informed of your progress.

  • Ann Harper moderator
    6 months ago

    @tmiller How is everything Going?

  • b4uweb@yahoo.com
    6 months ago

    If you have kids have them get a blood test because my mom has Waldenstrom Macroglobulinemia
    and I have CLL not sure if related but never know

  • b4uweb@yahoo.com
    6 months ago

    My mom has had Waldenstrom Macroglobulinemia for 16 yrs chemo every couple years but has done very well and rarely sick

  • TMiller author
    6 months ago

    Is your mother able to work? Does she have neuropathy due to chemotherapy? If so, did it ever go away or get any better? What about chemo fog, how long was it before this got better?

  • Yolanda Brunson-Sarrabo moderator
    6 months ago

    I wish your husband continued improvement; It’s a lot to take in for both of you. Positive energy your way! Best

  • CindyC moderator
    6 months ago

    I am glad to hear that your husband is done his chemo and now only has his immunotherapy treatments. You have had quite a year. Hopefully 2019 will be better! MD Anderson is a wonderful Cancer Treatment Center. You are in very good hands,

  • Anthony Carrone moderator
    6 months ago

    Hi @TMiller – What a year, indeed! You are not alone in experiencing those emotions – As I’m sure you’ve seen from other members stories. How have you and your husband been doing lately? Sending positive vibes for the immunotherapy next month! Please keep us updated on how everything goes 🙂

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