The Not So Subtle Art of Saying NoWhen I do my monthly lab work, I must go to my doctor’s office and they draw blood from my port. The veins in my right arm no longer work...Reactions0reactionsComments13 comments
My Little Brother Became a DaddyMy brother and I are only 13 months apart. My mother says it was a bit like having twins, but with one a being a bit more advanced. I think...Reactions0reactionsComments2 comments
One in a MillionI’m one in a million. Well…not exactly “one in a million.” I have polycythemia vera (PV) which is considered a rare cancer. According to the National Organization for Rare Disorders...Reactions0reactionsComments20 comments
Living With: Podcast Interview with Daniel MalitoDaniel Malito is an advocate on two of Health Union’s communities: RheumatoidArthritis.net and Blood-Cancer.com. I had the opportunity to interview him for the Health Union podcast, Living With. We spoke...Reactions0reactionsComments5 comments
ThankfulI sometimes think of how Leuk has changed my life. He’s certainly made me appreciate it more. Time spent as a husband, father, and grandfather has become way more important...Reactions0reactionsComments2 comments
It’s Okay to Feel Exhausted: Caregiver Fatigue and BurnoutWhen we think about fatigue and cancer, we often think about the physical and emotional toll cancer takes on the person diagnosed. Yet fatigue can also drastically affect the day-to-day...Reactions0reactionsComments10 comments
The Healing Powers of HumorI must start off by assuring the reader that when I say humor has healing powers, I do not suggest that humor can heal or cure a body from cancer...Reactions0reactionsComments14 comments
Get Cancer, Meet Interesting PeopleIn my thirty-some-odd years of medical adventures, I have met more than my share of characters. Any of you who have spent time in the hospital knows that nurses, doctors...Reactions0reactionsComments17 comments
So Many Signs, So Much WorryIf you have had two kinds of cancer, you get to worry about two sets of signs that could be something bad. In the part of my mind that worries...Reactions0reactionsComments6 comments
My Cancer Confidence BoostHaving cancer taught me so many things about myself and caused me to feel emotions that I didn’t even know were possible. Obviously, there were many negative sides of being...Reactions0reactionsComments7 comments
Monster in My ClosetWhen I was a kid there was no doubt in my mind there were monsters in the closet, but every time I’d get my mom or dad to look, I’d...Reactions0reactionsComments6 comments
An Honest Discussion on the Logistics of Getting Into a TrialClinical trials are not as straight forward as people think. I currently don’t qualify for two reasons. First, my myeloma has become sneaky (oligo secretory) and hardly shows up in...Reactions0reactionsComments2 comments
Guided MeditationMeditation has been shown to have multiple benefits on a person’s health, both physical and emotional. Regular meditation can help relieve pain, increase positive emotions, and improve memory and concentration...Reactions0reactionsComments3 comments
My Barber, My DoctorI got a haircut last week. I have so little hair at this point that my wife and kids haven’t even noticed it, two weeks later. Having so little hair...Reactions0reactionsComments9 comments
Resources for Cancer CaregiversWhen your loved one has cancer, you, the caregiver, need help too. The type and frequency of help that's needed can vary dramatically from person to person, but extra support...Reactions0reactionsComments4 comments
My Journey with ImmunotherapyThe purpose of our body’s immune system is to protect us against disease and infection. It does this by defending us from foreign substances such as bacteria, viruses, allergens, and...Reactions0reactionsComments2 comments
Finding Support Through Social Media as a Caregiver & PatientAfter being diagnosed with Hodgkin lymphoma at 25, my daughter Crystal had to spend a lot of time alone. I went with her to all of her treatments, but on...Reactions0reactionsComments2 comments
The Day I Shaved My Hair OffOne of the most anticipated experiences when it comes to blood cancer treatment is hair loss. It’s probably the first thing many people associate with cancer. I wasn’t sure how...Reactions0reactionsComments1 comments
Leuk's Nightly GameDo you ever find yourself lying in bed late at night, staring at the ceiling, and saying out loud, “WTF? I have leukemia?” (By the way, that stands for What...Reactions0reactionsComments22 comments
10 Ways to Balance Body and MindMental and physical health are intrinsically linked. Managing the stresses of a physical condition can be mentally and emotionally exhausting. Here we share 10 strategies for coping when you’re feeling...Reactions0reactionsComments6 comments