The most important thing you can do is ADVOCATE for YOURSELF. YOU are the one who is sick, not your DOCTOR. Yes your doctor is the expert but get second opinions, read up on the procedures & meds prescribed the best you can. Your ultimate decision could mean life & deTh. I would also suggest you bring somebody with you since the amount of information you get will be difficult for just one person to absorb. Take the advise if a 30 year survivor. Your DOCTOR is going to give you the best care he can even if you question them.