Newly diagnosed with leukemia
Hi, my name is Tammy glad that I found this group. I was recently diagnosed with CML in mid April. I started taking TKI (sprycel) medication. I’ve been on for two months I have not had any symptoms, but in the beginning of June, my white blood count went down to normal and then in the beginning of July my white blood count went low cell since the beginning of July, the doctor had me stop the medication at next week, I will be going for bloodwork again to see where I am at trying to regulate my medication to fit my needs. I still have decks emotions about what is going on as it was just found in routine bloodwork which I have been feeling fine not sick so by emotions go from why me too becoming angry, but I will get through this. Great to see comments and concerns from others with leukemia. Thanks for having me enjoy this group.
Welcome, Tammy. I know it's not the most fun reason to connect with others, but we're glad you found us, and we appreciate you sharing so much. I was diagnosed with Hairy Cell Leukemia in 2007. My blood cell counts have been a roller coaster over the years, but I have lived a pretty normal life. I'm certain that you and your health care team will find what is right for you. And know that whatever emotions you feel, they are valid. Emotions are usually a roller coaster for most of us too. I am including an article that might help you relate. https://blood-cancer.com/living/community
Please reach out any time for anything. We are all here to support each other.
Angie -team member
Yes, welcome to the group no one ever wants to be a part of. Emotions are definitely part of the initial process of comprehending this all at once. Though the body is doing its thing, it too is figuring this out with numbers up and down. It really can feel like a rollercoaster, but in time you'll find your groove around fighting through it as the warrior you are. Wishing you the very best!
