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Even With Low Energy, It’s Worth Getting up

It’s been over 5 years since my diagnosis and my cancer is still going, but slowing down. I have an enlarged spleen and liver. I get up and get dressed even if I don’t go anywhere. I have seven grandchildren that I love to inspire. I handle the pain well but being cold is hard to regulate. I want more energy but I have come to believe it is not gonna happen.

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Comments

  • Racheli Alkobey moderator
    1 month ago

    I love this concept. Even though the fatigue can sometimes be debilitating, at least we are alive and have TODAY to wear our favorite shirt and cook our favorite meal. This is such an important reminder. Thank you so much for sharing.

  • Crystal Harper moderator
    2 months ago

    It sounds like you’re a great role model for your grandchildren! I agree with Yolanda about exercise helping with low energy. Even if I just go for a short walk, I always feel so much better after! Wishing you all the best, Chuck. Please keep us updated on your progress and let us know if you find something to help increase your energy

  • Ann Harper moderator
    2 months ago

    I too have a granddaughter that inspires me. I also understand the coldness. My hands and feet get icy and I can’t warm up. That’s been better since I’ve changed my diet, but it makes it hard to want to go anywhere, especially when it’s cold out. I find it’s better earlier in the day. I rarely go anywhere in the evening.

  • chuck author
    2 months ago

    I have been inspired in the hem, wateing room. I try to talk to the people i sit by i have not had one person complain or be grouchey everyone seems to have a positive attitude. i like my Dr. I have a team of Dr’s and they seem to work well together. Lots of things are going on is why i dont have energy

  • Jim Smith moderator
    2 months ago

    It’s great you have that many grandkids to be inspired by the way you are handling your cancer. I imagine they are a good inspiration for you too. I have grandchildren as well (although you have me beaten by 3!). Good for you facing each day as positively as you can by getting up each morning and dressing for the day. You are an inspiration to me as well.

  • Yolanda Brunson-Sarrabo moderator
    2 months ago

    Hi Chuck,
    I love the fact you haven’t given up. The idea of getting dressed every day with a purpose even though you’re not sure what it says a lot! Low to moderate exercise is my key for my journey. Check out this great post, and perhaps talk further with your treatment team on other options to consider to vamp your energy. Best!

    https://blood-cancer.com/living/physical-rehabilitation-1/

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