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Very Rare Disorder

After feeling weak and tired for months, (as a medical transcriber I knew better), I finally went to my primary for a physical. Blood work revealed a low neutrophil (WBC) count and slight anemia. I was advised to follow up, but I did not. About a year later, I felt terribly weak and was sleeping too much. I finally visited my (new) primary. He called me in a couple of days to tell me he made an appointment for me the next day (!) with a hematologist/oncologist.

I had a bone marrow biopsy and was diagnosed with Hairy Cell Leukemia 4 days later. I was admitted to the hospital in a few days to begin chemotherapy for 7 days/continuous infusion 24 hours a day. I slept for the next 24 hours as the benadryl/chemo combination took its effect. I had some complications but was effectively treated and survived. Six months later a bone marrow biopsy showed a presence of fewer than 1% hairy cells remaining. That was 18 years ago, and here I am, a survivor.

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Comments

  • Ann Harper moderator
    3 months ago

    That is wonderful news. You are a survivor!!

  • Babygirl0308
    8 months ago

    Your story is an inspiration!
    Congratulations for being a Survivor!

  • Mrs.Potts
    8 months ago

    What a wonderful story!

  • Anthony Carrone moderator
    11 months ago

    Hi 2CDASavedMein2000 – Thank you for sharing your story! I’m glad that your “new” primary was able to get the appointment so fast. Although the official date has recently passed, happy National Cancer Survivor’s Day! We are honored to have you in the community. When you have some time, check out our new forum feature: https://blood-cancer.com/topic/leukemia/ – We hope to host some helpful discussions there! Feel free to create a new topic if you have one in mind! -Anthony (Blood-Cancer.com Team Member)

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