Very Rare Disorder

After feeling weak and tired for months, (as a medical transcriber I knew better), I finally went to my primary for a physical. Blood work revealed a low neutrophil (WBC) count and slight anemia. I was advised to follow up, but I did not. About a year later, I felt terribly weak and was sleeping too much. I finally visited my (new) primary. He called me in a couple of days to tell me he made an appointment for me the next day (!) with a hematologist/oncologist.

I had a bone marrow biopsy and was diagnosed with Hairy Cell Leukemia 4 days later. I was admitted to the hospital in a few days to begin chemotherapy for 7 days/continuous infusion 24 hours a day. I slept for the next 24 hours as the benadryl/chemo combination took its effect. I had some complications but was effectively treated and survived. Six months later a bone marrow biopsy showed a presence of fewer than 1% hairy cells remaining. That was 18 years ago, and here I am, a survivor.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.

Community Poll

Have you met another blood cancer patient?