Life with CML
Hello, my name is Danyell. I was diagnosed in September 2017 with CML or chronic myelogenous leukemia. It was a very different diagnosis story. I had gone for a regular eye check-up and they found something odd. They sent me straight to one of our big hospitals in WV and did all kinds of tests on my eyes. Then they just happened to do a blood test and white count was out of the roof. Then, they did a bone aspiration (most painful thing I have ever been through) and then spinal tap. They confirmed I had CML.
My CML treatment
I will be on chemo pills and manage my levels for the rest of my life. My immune system is almost non-existent, so when it's cold and flu season I wear mask and gloves when I go to the store so I won't get sick. When I first started on the chemo, I was so sick. I was dealing with the chemo and cancer side effects.
Finding the right doctor
The chemo I was on was one of the worst you can take and the doc I had wasn't trying to help me. She just wanted in and out of room quick as possible, so I finally found a better doctor and he actually cares and tries to address any issues I have. I love him and he's helping. At the moment, I'm fighting for SSDI because he said there is just no way I can work in my field. I was in the medical field.
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